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#syringomyelia

Posts tagged as #syringomyelia on Instagram

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Mai er syringomyelimåneden. Dette er en lidelse som kan oppstå både hos mennesker og dyr. Hunderasen cavalier king charles spaniel er svært utsatt for denne forferdelige lidelsen.  Syringomyeli oppstår når hodeskallen er for liten for hjernen, slik at hjernen presses ned i ryggraden. Dette fører til sterke smerter og såkalt "selvmordshodepine". Syringomyeli hos denne rasen er i all hovedsak menneskeskapt. Ifølge forskning fra England har cirka 70 prosent av cavalier king charles spaniel denne tilstanden.  Dyrebeskyttelsen Norge jobber for å få stanset uetisk avl av familiedyr. Signer vårt opprop: https://www.opprop.net/underskriftskampanje_mot_uetisk_avl_av_familiedyr  #dyrebeskyttelsen #dyrebeskyttelsennorgelove #dyrevelferd #syringomyelia #cavalierkingcharlesspaniel #hund #avl
The journey ahead is a long and treacherous one. Your skin will burn under the everchanging sun.  Your hair will fray. And your lungs will pay. Keep your eyes peeled. Keep steadfast and your fate shall be sealed. . . #syringomyeliawarrior #syringomyelia #raredisease #writersofinstagram #poetsofinstagram #writing #writercommunity #joints #jays #coffee #wakenbake #morningvibes #dailystruggle #pain
“I have been busy this week as usual. I have also been feeling good woohoo! The sun is shining this afternoon and I heard it might be warm enough again tomorrow to play in my swimmy pool.” Hope everyone is having a great weekend! Love, Stuey and family #superstuey #syringomyelia #cleftstrong #hydrocephalus #cav #puppy #rescue #cavaliers #puppies
#syringomyelia #chronicpain #ssdi #struggle
After several days of being sick due to complications with #chiarimalformation and #syringomyelia a little baking was in order to comfort my soul. Just doing a few things to get caught up for the new work week and being sure to rest when needed. #gooddayandbaddays #takeiteasy #dowhatyoucan
. my chair💕 . . #チワワ#白チワワ#ちわわ#白ちー#ぶさかわ#脊椎空洞症#chihuahua#かえる#チワワ部#ちわわ部#かえる顔#カエル#frog#syringomyelia#чихуахуа#chihuahawa#chihuahuas_of_instagram#chihuahuasmile#chihuahuaofinstagram#instadog#doglove#chihuahuaworld#chihuahuadog#chihuahuainsta#dog#chihuahuasofinstagam#chihuahualover#chihuahualife#치와와#chihuahuaworld#かえるのピクルス
It's been a month of me being able to be upright again. Wow. It feels so much longer than that. I can't really believe that it's been a month but moving on, we finished sorting out my "old" Lego, packing our bags and getting ready for our holiday today. We're having homemade chicken, bacon and cheese pastry slices and salad for dinner and then having a bath. Today has been exhausting and painful but it will be worth it to spend 5 days with Megan (my sister), her partner and baby Alora. • • • • • • #onemonthpostop #onemonthpostsurgery #sortingout #lego #packing #dinnerinspiration #eds #ehlersdanlossyndrome #chiarimalformation #arnoldchairimalformation #syringomyelia #syrinx #setd1asyndrome #tetheredcordsyndrome #younganddisabled #chronicpainsyndrome #chronicpain #chronicfatigue #chronicallyill #visualimpairment #visuallyimpaired #colourblindness #hyperacusis #tinnitus #ptsd #mentalhealthissues #invisbleillness #tzwrs🦓🌈
Honestly I’m at a loss of what to say with all this anti-trans bullshit going on in this country. I’m disabled and trans, and I really need access to healthcare.
**I miss the gym** - I never thought I’d say that! 😮😂😂 I’ve not been able to go for a few weeks because of my intercranial pressures being so messed up (and fighting this infection). I think some people thought I was a bit crazy joining a gym given the health journey I’ve been on over the last few years - you wouldn’t normally associate a gym as somewhere for someone whose body regularly can’t tolerate being upright! 😂. I can’t do a lot - a short exercise bike cycle and maybe a walk on the treadmill. I can’t push my heart rate past a certain BPM (as i start to black out), and I can’t go past a certain speed of walking (as the impact of foot to floor irritates the bottom of my brain). Everything I do is through pain, but I honestly think that makes me even stronger - who gives a **** about getting a bit out of breath compared to my normal daily pain levels 🤷‍♀️😂. It’s actually easier exercising with gym equipment than otherwise - more points of reference to supplement my poor balance (and lots of things to hold onto), and if I did need help, there are people around... ❤️ I won’t lie, I did feel really self conscious at first 😳 (using my stick, tripping over things, looking weak and wobbly) but everyone at @SilverbackGym is really lovely, and I soon realised everyone else was *way* more concerned with their own workout than anything I was doing😂😂. I do have to be careful about what I do and carefully balance my ‘energy accounts’. Once or twice I’ve expended too much energy in the gym and left myself too fatigued to easily breathe or talk at the end of the day. . Can I also just big up accounts like @stayinthearena and @strongmantye on here for making me feel gyms *are* somewhere for chronically ill & disabled folk too 💛. Without them I’d have no point of reference 🤷‍♀️. And to my husband @macrae_ian for inspiring me with his own fitness journey 😍 . . #gym #fitness #health #chronicillness
When nothing goes the way you want it to and the pain and sadness overpower what little joys you're able to find in life . #spoonshortage #spoonielife #spooniewarrior #chronicillness #chronicpain #spooniewarriortribe #intractablepain #disability #limitedmobility #mentalhealth #ehlersdanlos #chiarimalformation #syringomyelia #autism #tetheredcord #cantstopcrying
Some side snoot with heart paws for @cavalierpixel !!! ———- Still rocking my Love & Strength bandana all week to spread awareness for Canine Chiari and Syringomyelia and raise funds for SM research! Did you want a bandana but wasn’t able to get one before they sold out? DM @nukas.choice
The many faces of living with chronic illness and chronic pain. Inspired by @thesartorialspine I feel it is important to share the reality of living with multiple complex conditions and fluctuating levels of chronic pain and fatigue. I have good days and bad days, but I am always in pain, it is a constant in my life. The only difference is that some days I am able to tolerate all the symptoms and function in pain a bit better (usually due to an extended periods of rest, a combination of medication and mindfulness/pacing which causes pain levels to stabilise for a short while) and some days it completely floors me. I have days where I am unable to function at all. It takes alot of energy and effort to 'fake being well'. Perhaps you have seen me IRL looking like the top three photos, where I have had enough energy to put on my 'wellness mask', faking my best smile and mustering enough energy to leave the house for a few hours to do something 'normal'. Pain is always lingering in the background and the fatigue creeps up the more I engage in 'normal' activity. Not many people have seen me on my very worst days. I do not allow it and do not find it easy to allow people to see me at my most vulnerable and when I am a mess, literally falling to pieces because my body won't function and it hurts to move and even breathe at times. Only a select few I allow to see me on my worst days. But people in general may assume the bad days don't happen because they only see me on the rare good days (which can turn into bad days quite quickly if I don't rest, plan, medicate and pace properley). So this is me showing you me at my 'best' and my 'worst' despite still suffering and dealing with pain, fatigue and a whole host of other symptoms in every single photo. If make up and blow drying your hair could magically cure all illnesses, symptoms, pain and fatigue that would be an incredible thing!  As @thesartorialspine describes it - when you live with chronic illness you have an indoor
To most people a cold is just a cold 🤧 but to me and others with chronic conditions it’s like a lorry has run you over and still on top of you 🚛  Everything hurts more than normal, eyes are burning and my head hurts even more to lift off the pillow 🤦🏽‍♀️ anyone who knows me knows I don’t do well in being stuck in one place, I get extra bored 😂 I just hope it’s not that bad and I can get up later as last time it was a week in bed 🛌 . . . . #chronicillness #itsjustacold #chiarimalformation #syringomyelia #chronicpain #warrior
A grip so tight. A chest so full. Only a small weezing. Increased blurry sight. A little, I begin to drool. My consciousness seizing. I whisper, please stop. Please stop. . . #syringomyelia #syringomyeliawarrior #raredisease #suffocating #breath #coffee #wakenbake #wordoftheday #poems #poetry #paim #painwarrior #marijuana #cannabis #medicalcannabis #thc #cbd #chronicpain #chronicallyill #joints #dailystruggle #morningvibes #poetryporn #wordporn #poetsofig #writer #writercommunity #poet #poetsofinstagram #writing
I can take photos all day long. Lol calming for me to be behind the lens.
時間と私   今、人生で何度目かの長期入院をしています。  15歳で難病の診断を受けてから20年。 辛いこともあったけれど、その倍以上に楽しいことを経験してきました。  友達にも恵まれ、サプリや化粧品の企画開発・研究の仕事に就き、我ながら出来すぎた毎日だったと思います。  今回、入院を機に仕事を辞めました。 でも、作りたい商品、理想の働き方はあります。  会社では叶えられなかった夢を、これから先、少しずつでも叶えていこう。  時間は、誰にでも平等です。 その時間をどう過ごすか、誰と過ごすか。  こんなに贅沢に時間を使える今、 私の心と向き合おう。  #syringomyelia #脊髄空洞症 #わたしのこと #療養のこと #phytocosmetics #フィトコスメ #美容と健康 #sdgs #自立女性 #働き方の選択 #福岡 #筑後 #iターンlife
On Monday my neurosurgeon told me I not only have Chiari Malformation bur also have Syringomyelia.  Syringomyelia is a progressive Spinal Cord Disease that damages the spinal cord.  Living with these invisible chronic illnesses is beyond hard.  I cant even lift one of my
If we never experience the chill of a dark winter, it is very unlikely that we will ever cherish the warmth of a bright summer’s day. Nothing stimulates our appetite for the simple joys of life more than the starvation caused by sadness or desperation. In order to complete our amazing life journey successfully, it is vital that we turn each and every dark tear into a pearl of wisdom, and find the blessing in every curse. ~ Anthon St. Maarten  #chronicpain #chronicillness #spoonie #ehlersdanlossyndrome #scoliosis #kyphosis #syringomyelia #spinalcordinjury #degenerativediscdisease #sacroiliacjointdysfunction #arthritis #stenosis #neuropathy #spinalfusion #backpain #dysautonomia #chronicillnesslife #spoontheory #positivity #mindfulness #painrelief #journey #depression #ptsd #anxiety #blessings #qotd #disabledmum #wisdom #strong
. ライオンキング的な?? . #チワワ#白チワワ#ちわわ#白ちー#ぶさかわ#脊椎空洞症#chihuahua#かえる#チワワ部#ちわわ部#かえる顔#カエル#frog#syringomyelia#чихуахуа#chihuahawa#chihuahuas_of_instagram#chihuahuasmile#chihuahuaofinstagram#instadog#doglove#chihuahuaworld#chihuahuadog#chihuahuainsta#dog#chihuahuasofinstagam#chihuahualover#chihuahualife#치와와#chihuahuaworld#かえるのピクルス
Margot and I visited Woofstock today🐾 It’s was our first time attending and I seriously felt like a kid in a candy store at the @Wholeheartedpets x @Canadiantire booth with all the goodies they had for Margot. #ad ⁣ ⁣ I am mostly excited about @Petco products like #wholeheartedpets now being available at Canadian Tire. Drop by their super cute booth today to learn more! Also, follow along my IG stories for all the behind the scenes fun💖⁣ #petco #ctlovespets
I had hypotension again last night and woke up with extreme pain and stiffness in my neck, it’s a little less stiff today and the pain in my neck eased massively but in the evening it began to become stronger and it really hurts now. We started to sort out my “old” Lego and box it away for the future so that 1. It’s out of the way of a 5 year+ home full makeover/renovation and 2. It’s ready in storage for Alora when she is older and my and my other sister Rhianna’s future children, I got to sit in one of the most comfortable places for me and I’m really thankful for that. Later we watched a bit of TV and I did a bit of my loom-knitting, now I’m sat in “my” armchair whilst we do a little bit of packing for our holiday next week and then I’m off to bed so good night. Hope that you have all had a lovely day! • • • • • • #hypotension #stiffness #struggling #inpain #lego #packing  #eds #ehlersdanlossyndrome #chiarimalformation #arnoldchairimalformation #syringomyelia #syrinx #setd1asyndrome #tetheredcordsyndrome #younganddisabled #chronicpainsyndrome #chronicpain #chronicfatigue #chronicallyill #visualimpairment #visuallyimpaired #colourblindness #hyperacusis #tinnitus #ptsd #mentalhealthissues #invisbleillness #tzwrs🦓🌈
I’ve been loving the gorgeous gray tone of the @cavologybrand London City Leash with the @nukas.choice  Love & Strength bandana! #nukasnexttopmodel ——— What are your plans this weekend?
This patient presented with numbness and weakness in his legs. He had a spinal cord tumor on his MRI with a syrinx extending both towards the head and feet. The tumor was right at the anterior aspect of the cord. We did a T1 corpectomy. I had a heart surgeon available if we needed to take the sternum out of the way. Surgery went well. The tumor was very vascular, but separated from the cord well. Neuromonitoring was key and very helpful. Patient has made a good recovery. #spinalcordtumor #spinalcordinjury #syringomyelia #neurosurgery #neuromonitoring
#mayissyringomyeliaawarenessmonth #iserveabiggod #syringomyelia # syrinx #sm #asap
Cleaning my face after breakfast or SM symptoms bugging me… Sometimes it’s so hard to tell and makes my mom crazy! - - #syringomyelia #brusselsgriffon #grumpygriffons #socalbrusselsgriffons #saturdaymorning #griffon #smalldogsofinstagram
Love & Strength  That's what this bandana is all about! I bet you all have noticed our new charity bandana! We made this bandana together with @pupnamedaria her mom. 100% of the profits will be donated to charity and to raise awareness about Syringomelia and canine Chiari malformation! How cool is that!? We have sold a 100 bandanas in the past couple of days! Do you guys think we should restock?! Please let us know below. We will put you on a list. This way we can decide if it's reasonable to restock!  Love, Aria, Nuka and our moms! 💜💙
When pain takes over either physical or emotional we often forget about the love we have for ourselves, for our families and friends, pain takes every other  thought you have and tries to make you think of it a little more, that's ok pain tells us we are human. But when you live with daily pain the focus on loving your life and forgetting the pain is necessary, well for me it is. High five to all of you fighting painful physical and mental battles. Try to focus on the positives while looking after you.  #syringomyeliaawareness #syringomyeliawarrior #syringomyelia #physicalpain #mentalpain #loveoverpain #lovinglife #thewheeleddiva #pain #keepsmiling #keepgoing
Читаю я много литературы и разные жанры, пожалуй, только к фантастике равнодушна. Эта книга понравится всем, кто заботится о своем здоровье.  В ней я нашла много полезной для себя информации. Например, что происходит с нашим организмом, когда туда попадает различная пища. Вроде бы все это звучит сложно, формулы химические приводятся, но автор об этом рассказывает очень просто и с юмором, в книге он приводит очень много запоминающихся примеров, тут много очень прикольных аналогий, который сможет понять любой далекий от медицины человек. Что я для себя лично взяла: у меня нарушена транспортная функция, то есть не синтезируются и не доходят до "адресата" белки. На протяжении многих лет я экспериментировала на организме с помощью разных диет (расскажу о любой диете). Издевалась, мда и довела свою "машину" до состояния непригодности ))) Для восстановления начала курс галокамеры (для раскрытия и нормальной работы альвеол), ввожу в рацион жиры (рыбий жир и сливочное масло ежедневно для появления в организме сурфактанта), продолжаю активно двигаться для избавления гипоксии в теле и на
I want to leave you behind. But then I would miss the show. Watching you fester with your own kind. Leaving the ground rich to sow. Unbearable you might find. Deep down inside, nice and slow. I would leave you behind. But I'm in it now. . . #syringomyelia #syringomyeliawarrior #raredisease #wordoftheday #poems #poetry #writer #writing #spoonielife #spoonie #pain #suffering #jays #wakenbake #medicalmarijuana #medicalcannabis #cannabis #coffee #morningcoffee #morningvibes #dailystruggle
#repost @shippingangels • • • • • • A través de @cadenadefavoresvalera  El es Angel David Espinoza tiene 16 años, esta recluido en el Hospital de Valera con el diagnóstico de #siringomielia conocido como un trastorno en el cual se forma un quiste dentro de la medula espinal, lo que causa dolores, debilidad y rigidez en sus extremidades.  Angel necesita - Centrosdecama - Pañales de adulto - Gasas - Klinkosal - Proteínas  Fue operado de un testículo por padecer infección. A el le colaboramos con proteína #entereximx y un laboratorio que requería para su operación gracias al aporte de @organizationufce - #english -Through @cadenadefavoresvalera  He is Angel David Espinoza is 16 years old, he is confined in Hospital de Valera with the diagnosis of #syringomyelia known as a disorder in which a cyst forms inside the spinal cord, causing pain, weakness and stiffness in his extremities. .  Angel needs - Centrosdecama - Adult diapers - Gauze - Klinkosal - Proteins  He was operated on a testicle because of infection.  We collaborated with #entereximx protein and a laboratory that required for its operation thanks to the contribution of @organizationufce #shippingangels #nonprofitorganization #501c3 #ayudahanitaria #emergenciahumanitaria #voluntariosxvenezuela
There was a time when I was young the corn fields that surrounded me just were annoying! For miles it was all I saw and I could not wait to move far away and run from the mundane! Now, sitting on my country porch the fields are one of my greatest joys and peace in my journey! Calming! Surrounded by the miracle of the farmer who plants the tinniest seed with faith that it will produce provision! No guarantees, no certainty. Faith that if you sow.. provision comes! My heart is changing guys,  I mean just in the past couple months a “new” person is blooming! I hit a few bottoms in the last 6 months.. dangerous ones!! One thing I know is even when you hit what looks like your bottoms IF you allow it can become the comeback!! The view is the same... seems boring to many... to me it looks like a beautiful destination of provision!! Allow the journey, the circumstance, the pain, the rejection, the fear... grow into the provision that is not for the now, the momentary but eternity! #beautifuldestinations #change#createinmeanewheart #givemeyoureyes#country#cornfield#countrylife#beautyfromashes#chronicillness #syringomyelia #incurable#calm#peace#destination#myjourney#mystory#clouds#sky#myheart#grow#
A través de @cadenadefavoresvalera  El es Angel David Espinoza tiene 16 años, esta recluido en el Hospital de Valera con el diagnóstico de #siringomielia conocido como un trastorno en el cual se forma un quiste dentro de la medula espinal, lo que causa dolores, debilidad y rigidez en sus extremidades.  Angel necesita - Centrosdecama - Pañales de adulto - Gasas - Klinkosal - Proteínas  Fue operado de un testículo por padecer infección. A el le colaboramos con proteína #entereximx y un laboratorio que requería para su operación gracias al aporte de @organizationufce - #english -Through @cadenadefavoresvalera  He is Angel David Espinoza is 16 years old, he is confined in Hospital de Valera with the diagnosis of #syringomyelia known as a disorder in which a cyst forms inside the spinal cord, causing pain, weakness and stiffness in his extremities. .  Angel needs - Centrosdecama - Adult diapers - Gauze - Klinkosal - Proteins  He was operated on a testicle because of infection.  We collaborated with #entereximx protein and a laboratory that required for its operation thanks to the contribution of @organizationufce #shippingangels #nonprofitorganization #501c3 #ayudahanitaria #emergenciahumanitaria #voluntariosxvenezuela
. もーにん!!!☀️ . もうそろそろ起きて!!! . #チワワ#白チワワ#ちわわ#白ちー#ぶさかわ#脊椎空洞症#chihuahua#かえる#チワワ部#ちわわ部#かえる顔#カエル#frog#syringomyelia#чихуахуа#chihuahawa#chihuahuas_of_instagram#chihuahuasmile#chihuahuaofinstagram#instadog#doglove#chihuahuaworld#chihuahuadog#chihuahuainsta#dog#chihuahuasofinstagam#chihuahualover#chihuahualife#치와와#chihuahuaworld#かえるのピクルス
Sometimes I feel too awkward to just smile at the camera, so this happens instead
One of the things about finding out your sick is that you learn how to enjoy life different through different eyes. I've said it before, but I really notice it more every day. Like expanding a photo to notice all it's fine detail.
Last night was horrendous. I could not get comfortable. The pain kept me awake. We took my blood pressure because I kept getting out of breath (even though I wasn't doing anything or minimal things) and I had Hypotension. I didn't fall asleep until like after 3/4 am. It's fair to say that I'm exhausted now and in SO much pain, I have my Maths lesson in a bit so hopefully that will distract me a bit. We've booked a holiday for next week in a holiday apartment near where my sister Megan lives and I'm really excited! • • • • • • #roughnight #hypotension #struggling #tired #inpain #holiday  #eds #ehlersdanlossyndrome #chiarimalformation #arnoldchairimalformation #syringomyelia #syrinx #setd1asyndrome #tetheredcordsyndrome #younganddisabled #chronicpainsyndrome #chronicpain #chronicfatigue #chronicallyill #visualimpairment #visuallyimpaired #colourblindness #hyperacusis #tinnitus #ptsd #mentalhealthissues #invisbleillness #tzwrs🦓🌈
There is an odd sound. Seemingly to my ears it is bound. A whisper of my name. I hear it again and again. The sofest voice. Holding my attention in rigid poise. Wake up, wake up the day is now. You can go as far as the cord will allow. .. . #syringomyelia #syringomyeliawarrior #raredisease #chronicillnesswarrior #poetry #poems #wordsoftheday #coffee #morningcoffee #morningvibes #dailystruggle #cannabis #medicalcannabis #medicalmarijuana #cannabisculture #painwarrior
A TRIBUTE TO LOLA. . Cavaliers are Special, and Lola, a beautiful cavalier from Italy most surely was. This brave little girl fought terrible diseases like syringomyelia for most her life. She recovered well from surgery to her skull to fix SM but later developed cancer. She has been very much loved by her mom and an amazing example of strength and courage.  Sweet Lola will never be forgotten by those that knew her. . . . . #cavalierkingcharlesspaniel  #blenheimcavalier #cavaliersofinstagram #cavalier #ckcs #cklifefeatures #ckcsofinstagram #thecavalierway #cavlife #cavaholic #doglover #ilovemydog #doglife #cavaliersdoingthings #dogsofinstagram #cavaliercommunity #purelove #ilovemycavalier #cavalierdogmoments #instacavgang #cavalierslove_feature #mvd #syringomyelia #chiarimalformation
Have you guys tried Bang Bang IceCream? Did you also have to wait a million years in line to get your icecream? 🤣 Totally worth it right? ⁣⁣⁣ ⁣⁣⁣ Kam tried the Totaro flavour and I had the nocciola with the everything cookie. I have mixed feelings about Taro in a form of icecream (Kam loved it) but love me some hazelnuts and the flavour I chose. ⁣⁣ ⁣⁣ Also, this is not your most insta-worthy, picture perfect photo, but I thought @sassymargot looks so adorably happy. She’s had a rough couple of days so here it is.⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ #chooselovely #beautyyouseek #choosehappy #mybeautifulsimplicity #tastetoronto #cavalierkingcharlesspaniel #syringomyelia #thepeoplescreative #cavalierworld #tofoodies#seekinspirecreate #slowlivingforlife #asecondofwhimsey #momentsofmine #fluffypuppy #livemoremagic #thedulcetlife #bangbangicecream #itsacavlife ⁣
Thank you all so much for your love and support for Margot💖 As you can see it’s business as usual for Margot despite her SM/CM diagnosis.Her sass is here to stay and I am ok with it🙈Tomorrow is spa day and the sass is going to skyrocket.
. 昨日の夜🌝  ころんねー、 一緒に寝よか?  えーー、いややわ!! . . て、寝るんかーい!! . #チワワ#白チワワ#ちわわ#白ちー#ぶさかわ#脊椎空洞症#chihuahua#かえる#チワワ部#ちわわ部#かえる顔#カエル#frog#syringomyelia#чихуахуа#chihuahawa#chihuahuas_of_instagram#chihuahuasmile#chihuahuaofinstagram#instadog#doglove#chihuahuaworld#chihuahuadog#chihuahuainsta#dog#chihuahuasofinstagam#chihuahualover#chihuahualife#치와와#chihuahuaworld#かえるのピクルス
A mai meló nem volt balesetmentes, még a lábamat is sikerült elvágni, de haladok. 😉 #whitestarline #syringomyelia #syringobulbia
Vicious beast.
A little #tbt action with our first Bobby Jones Classic ever held in 2012 at East Lake Golf Club with a putting tutorial from Mr. Jay Haas! A true gentleman, so  patient🏌🏾‍♂️ . Swipe and see if you can spot the other celebrity guest on the course😉 . . . . #bobbyjonescsf #eastlakegolfclub #golf #putting #bobbyjonesclassic #tbtee #jayhaas #bjclassic #csf #syringomyelia

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