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#missionfindacure

Posts tagged as #missionfindacure on Instagram

223 Posts

💛💙💜💚❤ #repost @robertdowneyjr • • • • • • Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness -------------------------------
This evening  is Rare Disease Day Conference at Scottish Parliament our trustees Louise Wilson and Lisa Hunter are en route just now travelling from Balloch to Edinburgh raising awareness for #rohhad 👌 #gomadforrohhad #missionfindacure
#repost @robertdowneyjr  A real superhero stands up for those who are vulnerable and suffering. Well-known celebrity and Iron Man @robertdowneyjr teamed up with Aaron Hunter to help raise awareness for the children who suffer from the extremely rare, life threatening and life limiting disease ROHHAD.  Together they hope to raise funds to help researchers in America, Canada, Italy and the UK , understand the disease, improve treatments and hopefully one day find a cure.  Watch the video - shared on our Facebook page.  Thank you #teamdowney for #showingyourrare 💙  Credits: @mo_freek and @jimmy_rich from #teamdowney
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness @robertdowneyjr @doubleuayne  #🃏comicsweaties©📙
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Reposted from @teamdowney1965 -  Today is Rare Disease Day 2019 - Real hero right there. Everyone deserves hope.. Aaron, You are not alone. - I asked everyone please pray for this child please pray for all the children ! -  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness @rohhad_association_charity #thankyou #teamdowney #family  #susandowney @robertdowneyjr @jimmy_rich 📹 - #regrann
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#repost credit to @robertdowneyjr Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness #thor #loki #wintersoldier #buckybarnes #tomhiddleston #markruffalo  #captainamerica #mcu #marvel  #steverogers #chrisevans #valkyrie #infinitywar #teamcap #thorragnarok #captainamericacivilwar  #ironman #blackpanther #blackwidow
«Железный человек» с золотым сердцем. Сегодня Всемирный день редких заболеваний и Роберт Дауни Младший рассказал об одном из таких: синдром Роххад. На снимке маленький поклонник и друг Роберта - девятилетний Аарон Хантер, страдающий от этого непростого заболевания, которое поражает именно детей. Примерно до трёх лет синдром никак не проявляет себя и ребёнок нормально растёт и развивается, а затем молниеносно малыш сталкивается с внезапным ожирением, проблемами с дыханием, гормональной дисфункцией и риском отказа внутренних органов в любой момент. Диагностирование заболевания сейчас находится в плачевном состоянии: проходят годы прежде чем врачи могут поставить правильный диагноз и назначить терапию несчастным детям. Уже известны случаи летальных исходов. Болезнь эта совсем не изучена: не проводится масштабных исследований, не производится эффективных лекарств: попросту нет финансирования. Именно поэтому Роберт помогает фонду «Ассоциация Роххад» донести проблему до широкой общественности. Актёр снялся в фильме, рассказывающем о том, с чем приходится жить семьям этих
#repost @imironstark • • • • • Today is Rare Dissease Day 2019. Please watch the video. https://youtu.be/a-jXa5yzRNc  #rarereality #shareyourrare #showyoucare #raredisseaday #gomadforrohhad #missionfindacure #rohhadawareness #robertdowneyjr #rdj #teamdowney #teamstark #avengersendgame #endgame @robertdowneyjr @rohhad_association_charity @jimmy_rich @mo_freek
#repost of @robertdowneyjr ----- Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
I had to repost @robertdowneyjr PLEASE go to his bio and watch the video. Help spread the awareness #godbless #prayingforacure #spreadawareness #shareyourrare #showyoucare #icare #rarediseaseday #2019 #gomadforrohhad  #gomadjumpforrohhad #jumpinamudpuddle #mudpuddles #mudpuddle #jump #missionfindacure #rohhadawareness #ironman #thankyou #robetdowneyjr for raising this awareness! 😘 I can’t believe how low some of these hashtags are for this 💔 let’s #spreadtheword #childernoftheworld
Today is Rare Dissease Day 2019. Please watch the video. https://youtu.be/a-jXa5yzRNc ••• #rarereality #shareyourrare #showyoucare #raredisseaday #gomadforrohhad #missionfindacure #rohhadawareness #robertdowneyjr #rdj #teamdowney #teamstark #avengersendgame #endgame @robertdowneyjr @rohhad_association_charity @jimmy_rich @mo_freek
@robertdowneyjr post/📸 ➡️ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#new post of #robertdowneyjr in his ig, Good Morning y'all.. Have a fun day 😋♥️---Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Reposted from @robertdowneyjr -  Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness - #regrann
#shareyourrare #showyoucare #rarediseaseday #2019 #missionfindacure When you watch the video, please be kind to pledge an amount, and share the video on your own social network. It would get us closer to the target $343k/£243K to access the treatment at Memorial Sloan Kettering Cancer Center in New York. Thank you for giving Maya hope🎗  If within the UK, text MYNA99 then £1-£10 to 70070.  https://solvingkidscancer.org.uk/campaigns/maya-nash/  https://www.justgiving.com/campaign/mayanash
#repost @robertdowneyjr with @get_repost ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#repost @robertdowneyjr ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Good Morning. Z😙😙😙 From @robertdowneyjr -  Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness - #regrann
#repost @robertdowneyjr with @repostsaveapp + ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#repost @robertdowneyjr • • • • • • Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness * Absolute golden heart 💛💛💛 #robertdowneyjr #rdj #sherlockholmes #ironman #tonystark #thejudge #tropicthunder #chaplin #marvel #avengers #charities #goldenheart #robertdowneytease
#repost @robertdowneyjr ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
We are absolutely delighted to share with you all how successful our Annual Charity Ball was.  This year the Ball raised in total £7080.35 🙌🏼🎉👏🏻 and after running costs we now have a further £4729.35  that will be used to fund Medical Research towards finding a cure for all of the children battling ROHHAD Syndrome.  We would like to say a massive thank you to each and everyone of you who came along to our annual ball and helped us reach this incredible amount❤️ A special thank you to our sponsors who helped ensure the night was spectacular!, The Alea Glasgow Casino, Lauren Moffat and her amazing team, Gracious Partys Stephen Dunn, JJR Print Ltd, TCB Photography Pamela and Michael and the amazing All Dressed Up ❤️ To our Incredible Ambassadors, Hosts and Performers for the evening, Lee Samuel Emily Middlemas, Jane McCarry, Mark Cox, Dean Alexander, Chris Henry - Comedian and Michael Dineen ; each of you helped make the evening one to remember so thank you very much.  To everyone who donated a raffle prize what a night it was for winning ! The Prizes were Amazing 🙌🏼 The professional photographs will be available within the next few weeks and we will share the link to them via our social media pages.  All of us at team ROHHAD Association are so deeply grateful to you all and we hope that everyone of you had the most amazing night.  Together we will find a cure  THANK YOU! And Same time next year everyone ?! 🙌🏼❤️ #gomadforrohhad #nottoraretocare #missionfindacure
Super Excited 🎉😁 keep watching our social media and also @charitybuzz social media pages from 8pm GMT onwards this evening such an incredible opportunity for all Groot @vindiesel and @marvel Fans 🙌🏼 Aaron is so excited and so grateful for the incredible support from his favourite heroes and all of you too !  we can't wait for you to see the way in which they are continuing to help 👌🙌🏼 #gomadforrohhad #missionfindacure and as our good friend @robertdowneyjr has said together we will find a cure 💞
It is now officially SuperHero Month and Not to late to join us and register for our Awesome Sports Challenge #zerotohero 🙌🏼👌 On Saturday the 12th of May A group of ROHHAD Avengers including, Aarons Dad Ian, his big Sister Lauren, Charity Trustees Stephen Whyte, Kathryn Brownlee and quite a few friends and children are going to climb the stunningly beautiful Ben Lomond 🙌🏼😁 They would love more ROHHAD Avengers to join them as they scale the Ben and complete some of their #zerotohero challenge  Who is up for it ? To join them register for #zerotohero via our website www.rohhadassociation.com and choose climbing as your chosen sport !  Then email or pm us or even comment below and we will forward details of the time the team will begin their climb !  Dress appropriately for the weather and please only do this if you are fit and well enough too.... Aaron will be at the bottom to wave you all off and again to give you your medals when you finish the climb.  Stephen our awesome trustee is organising this climb so please email or comment and we will post the times and details on all our social media 🙌🏼😁👍🏻 #gomadjumpforrohhad  #missionfindacure #findacure #zerotohero  Go On This Year.....Be A ROHHAD HERO!
😍😍😍😍😍 It's happening the winners from @robertdowneyjr #raf campaign will be walking down the red carpet hanging with our awesome friend and watching the most exciting movie ever !!!! At Tonight's @marvelstudios #infinitywar Premiere.  Congratulations to the winners we hope you have an EPIC Time 💞 Aaron says he is so happy for you all and could you please give his awesome friend IronMan a huge hug from us all 😜💞 Seriously ! This will be the Best Day Ever ❤️ #infinitywar Thanks again to everyone who entered and supported our charity ❤️ #ironman  #makingdreamscometrue #missionfindacure #gomadjumpforrohhad 📷 @jimmy_rich #repost @rohhad_association_charity with @insta.save.repost • • •
On Saturday the 12th of May A group of ROHHAD Avengers including, Aarons Dad Ian, his big Sister Lauren, Charity Trustees Stephen Whyte, Kathryn Brownlee and quite a few kids are going to climb the stunningly beautiful Ben Lomond 🙌🏼😁 They would love more ROHHAD Avengers to join them as they scale the Ben and complete some of their #zerotohero challenge  Who is up for it ? To join them register for #zerotohero via our website www.rohhadassociation.com  Then email or pm us or even comment below and we will forward details of the time the team will begin their climb !  Dress appropriately for the weather and please only do this if you are fit and well enough too.... Aaron will be at the bottom to wave you all off and again to give you your medals when you finish the climb.  Stephen is organising this so please email or comment and we will post the times and details on all our social media 🙌🏼😁👍🏻 #gomadjumpforrohhad  #missionfindacure #findacure #zerotohero  Go On This Year.....Be A ROHHAD HERO!
Bling makes me happy! #jdrf #missionfindacure
#repost @type.one.derful (@get_repost) ・・・ #neverstopbestrong unless of course you need a wee and then your daughter is thirsty and then the treadmill belt slips and then you realise you didn't put your insulin pump back on after getting changed and then just lose all interest.  I will try again later, but this run was not for me  Am loving the compression socks I just bought though, and will definitely be wearing these all day!  #milesformalaika  #mightierthantypeone  #missionfindacure
#fmsphotoaday #day18 something I #hate. #ihatecancer!!!! I#hate the #plaques on my skin caused by the only #treatment option #carcinoidcancerawareness #rare#thelookinggoodcancer #slowgrowing#missionfindacure#livestrong#survivor#fuckcancer #ciaocancer#zebra #november1#blackandwhiteribbon#recognizethestripes