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#invisibledisabilities

Posts tagged as #invisibledisabilities on Instagram

10.173 Posts

10/21/18 - Distortion in Perspectiveβœ¨πŸ‘½βœ¨ . . . #selfie #mirrorselfie #glassesreflection #distortion #edited #invisibledisabilities #ftm #femmetrans #transgender #femme #femmenonbinary #nonbinary #lgbtq #pride
NOT ALL DISABILITIES ARE VISIBLE. repost @selmablair 'I am disabled': Selma Blair reveals she has multiple sclerosis. “I am disabled. I fall sometimes. I drop things. My memory is foggy...” #speakout #mswarrior #msstrong #disabledactress #multiplesclerosis #selmablair #invisibledisabilities #invisibledisability #autoimmunedisease #chronicillness “What’s most encouraging about Selma’s post is the attitude of her colleagues. Having the right support around you is crucial because when your employer takes time to understand MS, you can enjoy a full working life for as long as you want or are able to.” #theguardian
We interrupt your regularly scheduled wobbly cuteness to talk about Invisible Disabilities Week! As many of you know, my human @bamboo_spine_jewels lives with disabling autoimmune diseases that are "invisible," meaning that she doesn't "look" disabled, at least not in the way that many people understand the term. My human says: ・・・ "I am what someone with an 'invisible' disability looks like. It's invisible disabilities awareness week! Learn more from the Invisible Disabilities Association @invisibledisabilities πŸ’™πŸ’™πŸ’™ My story in a nutshell: I was a ballet dancer for over twenty years, dancing despite excruciating inflammatory arthritis pain in my neck/spine/pelvis that was overlooked and misdiagnosed for 15 years. Physicians, physical therapists, chiropractors, naprapaths, acupuncturists, etc all attributed my chronic pain to ballet and looked no further, maybe unable to believe that I could dance in as much pain as I was saying. Sadly, many healthcare professionals even suggested it was all in my head. But I danced anyway because dance is what gave my life joy and meaning! Eventually, my entire neck/spine/pelvis fused naturally, a hallmark of ankylosing spondylitis. I was finally diagnosed with ankylosing spondylitis and axial psoriatic arthritis at the @mayoclinic after fifteen years of debilitating, life-destroying symptoms, and I am so grateful because the diagnosis changed my life, my view of myself, and opened the door for proper treatments and therapies. Sadly, the average lag time from disease onset to diagnosis for AS is 8-11 years (longer on average for women) because of its so-called invisibility and the way chronic pain is dismissed. Now I have an interdisciplinary MFA and make work about the experience of suffering from a painful disease that is invisible and dismissed by all aspects of society." #invisiblenomore #spoonie #spondy #aswarrior #bamboospine #thenocomfortzone . . . . . #psoriaticarthritiswarriors #chronicpainwarrior
1st you must know that this is part of my daily BED Yoga!  Perfect for pain warriors like myself, but oh dear - Joel (my husband) has just πŸ˜‚πŸ˜‚watched me doing these shoulder rolls & exaggerated smiles. So guess what - we boomeranged it! πŸ˜‚πŸ€£πŸ™πŸΎ Did you know smiling is a really important part of yoga? πŸ˜πŸ˜€πŸ˜πŸ˜› @doyouyoga says that "Smiling is the most important yoga pose you will every practice." There's even loads of facial poses for anti-ageing... I need that for this awful double chin on show!! πŸ˜‚πŸ€£πŸ˜…πŸ™ƒπŸ˜†πŸ˜πŸ˜ƒπŸ˜€πŸ˜€ #tearsofstrength #laughingwhileyourecrying  #doyouyoga #smilingyoga #laughingyoga #facialyoga #smilingiscontagious #smilingsmyfavorite #smilingface #smilingface #bestyoga #bestyogapose #bedyoga #yogainbed #boomerangfun #chronicillness #chronicpain #chronicinsta #disabilities #invisibledisabilities #chronicillnesswarriors #painwarriors #braindisease  #brainandspine  #disabilityisnotinability  #disabilitylife
Happy invisible disabilities week! Pls stop defaultly assuming everyone is able bodied, it often places pressure on people to push themselves past their limits 😘 #eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #fatigue #chronicpain #invisibledisability #invisibledisabilities #artistsofinstagram #artistsoninstagram #fineart #photography #contemporaryart #feministart #invisibledisabilitiesweek @ehlers.danlos
Breakfast in bed! πŸ’™ I've come to the realisation that I've basically been living in bed for almost 2 months now. πŸ˜•  I'm not calling it bedridden quite yet, because I can get up and walk in the house, to the loo with my walker mostly, but I'm not really much more mobile than that due to the symptoms that come on within moments of being upright. 😱  For an idea, yesterday I woke up from a nap, half paralysed, needed to go to the toilet, used electric controls to get myself into sitting position, hot flush, take off long sleeve shirt, crash back down... Checked heart rate: 135! I hadn't even stood up yet.  That was extreme, usually its just over 100 by that point, but with hot flush and removing clothes, the HR went way too high. Considering my anaerobic threshold is 92. Anything above that and I start shaking and aching... That's when the lactic acid starts messing with me.😣 So what healthy people might get after running a race, I get from sitting up in bed. It's not fun. Last time this happened was in May after ME Awareness Week when I spent too much time online and chatting with other warriors. 2 months of it, non-stop. Not quite as bad at the moment, so I'm trying to take precautions. πŸ˜‰  Despite all that, I'm happy, I'm spending my down time reading on kindle and napping. And if I can manage a good reclined position then I do some writing for the blog or here. I'm planning on setting up a watercolour station by the bed, so I can try painting in bed too. 😁  I have a feeling I'll need to hibernate in my room for the winter. πŸ˜…  It's all about flexibility, isn't it? Adjusting to the ever fluctuating condition. Challenge accepted! πŸ‘πŸ˜Ž --------------------------------------------------- 🌟 Chronicallyhopeful.com --------------------------------------------------- #pwme #mecfs #millionsmissing #roadtorecovery #spoonie #bedridden #sickgirl #chronicillness #spoonielife #chroniclife #disability #chronicpainwarrior #invisibleillness #lowbattery
Mild Spring evenings and #thriftshop tops. I picked up 3 great items at the @the123project Thrift event yesterday. You can see them in my stories. The other two were vintage 60s and 70s  pieces but this top caught my eye. Can't go past a bit of colour and the comfort of an oversized top. So great to see it so well supported and that they raised $1300. The clothes are still there for the next two weeks so if you couldn't make it on the weekend you can still pop in. . . I'm glad I went yesterday though it was tiring. Standing with my walkingstick while chatting and looking at clothes in a small space is tough and I realise how small my reserves are.  I find with so many things happening at once my brain and body are rapidly overwhelmed and exhausted (plus being properly upright my bp starts to drop which starts everything else). I'm always checking with David when we're out if I look like I'm being rude when it happens as I find myself struggling with small talk or concentration and becoming lasar focused on a single thing at a time eg getting from a doorway to the table in a restaurant. I've heard similar from many in the Dysautonomia community so I know it's not just me but I am really self conscious of it after the fact (usually when I finally find a quiet low stimulus place to refocus) in the moment it almost becomes a survive to the end of the task kind of issue. Pesky #invisibledisabilities and #visibledisabilities really like to hang out together. . . [Image: Michelle can be seen from the waist up in her backyard. She wears a colourful multi-print top dominated by shades of blue and magenta with one hand resting on her head the other at her collar she is looking at camera. Behind her golden light shines on the gums and a grey wooden fence can be seen behind pots of herbs, flowers and a pink flamingo.] . . #dysautonomia #chronicillness #disability #fashion #frockingup #ootd #wiwt #40plus #40plusfashion #everydaystyle #disabledandstylish #365dayswithdisability
"Not all hero's wear capes." • • #petphotography #pitsky #muttlove #pitbullambassador #workingdogsofinsta #ptsddogssavelives #servicedogssavelives #servicedog #workingdog #servicedoglife #servicedogsofinstagram #snownose  #heroswearvests #notallheroswearcapes #dogoftheday #siberianhuskiesofinstagram  #superhero  #ptsdawarness #servicedogteam #doggo  #invisibledisabilities #ptsd#animaladdicts #features4huskies #servicedogsofinstagram #workingdog #fitdog#dogtraining  #tasktrained  Hey! My names Athena! I was born September 7th, 2015.  I am a Stafsky (Siberian husky and Staffordshire terrier mix) I'm a (PSD) Physicatric Service Dog. My tasks invlude migraine alert, anxiety/PTSD episode alert and response, removing my mom from bad situations, body blocking, guiding, momentum pull, slowing down moms heart beat, DPT, stoping destructive or harmful behavior, and more.  Vest and bandanna by @voodoopawsaz ❀ Ambassador of @voodoopawsaz
So a few people have said mom never lets me olay or be a dog. We'll you guys are wrong, there's many times a day mom let's me olay and be the crazy husky I am. So here's a video of me doing zoomies enjoy. I know at the end it looks like I tried to bite one of my favorite humans Julie, but no I slap hands that try to get my ball when I'm excited • • #petphotography #pitsky #muttlove #pitbullambassador #workingdogsofinsta #ptsddogssavelives #servicedogssavelives #servicedog #workingdog #servicedoglife #servicedogsofinstagram #snownose  #heroswearvests #notallheroswearcapes #dogoftheday #siberianhuskiesofinstagram  #superhero  #ptsdawarness #servicedogteam #doggo  #invisibledisabilities #ptsd#animaladdicts #features4huskies #servicedogsofinstagram #workingdog #fitdog#dogtraining  #tasktrained  Hey! My names Athena! I was born September 7th, 2015.  I am a Stafsky (Siberian husky and Staffordshire terrier mix) I'm a (PSD) Physicatric Service Dog. My tasks invlude migraine alert, anxiety/PTSD episode alert and response, removing my mom from bad situations, body blocking, guiding, momentum pull, slowing down moms heart beat, DPT, stoping destructive or harmful behavior, and more.  Vest and bandanna by @voodoopawsaz ❀ Ambassador of @voodoopawsaz
Momma got an ouch today while using the chain saw. This was my opinion while they patched her hand up..... #wicketthewonderpup #invisibledisabilities #pots #accidentswillhappen #sheisjynxed
#dayinthelife Of Me @Scott1984_FP https://www.pscp.tv/Scott1984_FP/follow ,Talking About Mental Health & #life ,Through #socialmedia & #instagram Shares,Likes, #photos , #videos , #posts , #rt's , #screenshot , #screenshots :) #bedshour #bedford #bedfordshire #nhs #share #chronicpain #pain #crps #rsd #rsds #wristinstability #invisibledisabilities #mentalhealth #depression #anxiety #bpd #eupd
We love our @voodoopawsaz set up!!! • • #petphotography #pitsky #muttlove #pitbullambassador #workingdogsofinsta #ptsddogssavelives #servicedogssavelives #servicedog #workingdog #servicedoglife #servicedogsofinstagram #snownose  #heroswearvests #notallheroswearcapes #dogoftheday #siberianhuskiesofinstagram  #superhero  #ptsdawarness #servicedogteam #doggo  #invisibledisabilities #ptsd#animaladdicts #features4huskies #servicedogsofinstagram #workingdog #fitdog#dogtraining  #tasktrained  Hey! My names Athena! I was born September 7th, 2015.  I am a Stafsky (Siberian husky and Staffordshire terrier mix) I'm a (PSD) Physicatric Service Dog. My tasks invlude migraine alert, anxiety/PTSD episode alert and response, removing my mom from bad situations, body blocking, guiding, momentum pull, slowing down moms heart beat, DPT, stoping destructive or harmful behavior, and more.  Vest and bandanna by @voodoopawsaz ❀ Ambassador of @voodoopawsaz
Some people ask my momma where she got my whole set up from well here you guys go! @voodoopawsaz made my entire custom set up! They made my vest, collar, bandanna, leash and patches! Defiently give them a look and a follow! • • #petphotography #pitsky #muttlove #pitbullambassador #workingdogsofinsta #ptsddogssavelives #servicedogssavelives #servicedog #workingdog #servicedoglife #servicedogsofinstagram #snownose  #heroswearvests #notallheroswearcapes #dogoftheday #siberianhuskiesofinstagram  #superhero  #ptsdawarness #servicedogteam #doggo  #invisibledisabilities #ptsd#animaladdicts #features4huskies #servicedogsofinstagram #workingdog #fitdog#dogtraining  #tasktrained  Hey! My names Athena! I was born September 7th, 2015.  I am a Stafsky (Siberian husky and Staffordshire terrier mix) I'm a (PSD) Physicatric Service Dog. My tasks invlude migraine alert, anxiety/PTSD episode alert and response, removing my mom from bad situations, body blocking, guiding, momentum pull, slowing down moms heart beat, DPT, stoping destructive or harmful behavior, and more.  Vest and bandanna by @voodoopawsaz ❀ Ambassador of @voodoopawsaz
A massive thank you to everyone that joined in The Smiley Face Project for Invisible Disabilities Week. It was beautiful to see so many people joining in. We saw warriors, teachers and students, organizations, and mental health teams participating. This event will return next year β€οΈπŸ’•β€οΈ. - - #invisibledisabilitiesweek #invisibledisabilitiesweek2018 #idw #idw18 #imnotinvisible #invisibledisabilities #invisibledisability #invisibleillness #chronicillness #mentalhealth #mentalillness #arthritis #autism #sjogrenssyndrome #cfsme #ibd #fibromyalgia #depression #anxiety #bipolar #lymedisease #copd #ms #crohns #schizophrenia #bpd #crps #lupus #andmanymore - - @mhiir_14 Find our main page on Facebook #mentalhealthandinvisibleillnessresources
My dog does this amazing thing where he just exists and makes my whole life better because of it😌❀ • • • • • • • Follow our pawtners! 🐾 @servicedogabraxos  @sammy_the_service_doodle @skyla_the_service_dog @alu.sdit
To wrap up Invisible Disabilities Week. You can't see all illnesses.  #invisibledisabilities #ricohgr
"I am not this body. I am not this job. I am not this situation." Invisible Disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunctions, brain injuries, learning differences and mental health disorders, as well as hearing and vision impairments. These are not always obvious to the onlooker, but can sometimes or always limit daily activities, range from mild challenges to severe limitations, and vary from person to person.  Need a community where others understand you and your illness? Join the #InvisibleDisabilities Community. Have you ever thought about sharing your personal journey with illness and pain? Be a part of the Invisible No More Campaign.  #cbdhealth20 #wellness #naturalhealth #health #focus #clarity #life
#repost @chronicallyhopefulblog (@get_repost) Thank you for sharing! πŸ’– ・・・ I'm ashamed to admit that I was one of those people who thought that if you use a wheelchair, it means you cannot walk and if you have an illness or disability it would be obvious to everybody, because you're suffering in some way, you couldn't possibly be smiling through life.  Oh, was I wrong! πŸ˜”  I now have an invisible disability. On the rare occasions I make it out of the house, once or twice a year currently, you are likely to think there is nothing wrong with me, specially if you saw me standing up from my wheelchair.  I dress like everybody else. I'm not overweight or underweight. I'm not deformed in any way, I don't have any outward scars or rashes to indicate any issues at all and I can speak for myself.  I don't display any of the typically, inappropriate though they may be, stereotypical clues some healthy people might look for when trying to identify disability.  Granted, in my current state I'd not last 10 minutes outside of the house, so I'm now just invisible altogether, but in the past, when I was doing a bit better, this would have been the case. Now, on my good days, you'd not find me out and about, but in my house, chatting with my sister or playing a game on the Switch.  You'd not know something was wrong until I absentmindedly stayed upright too long or got too excited during the game and suddenly found myself collapsing, unable to speak or move. Body shut down from trying to act "normal". My disability is invisible, but it's effects are devastating. So when you see me out there, doing something normal, looking fine for a few minutes, don't judge or stare. I am just trying to enjoy/endure a short while of independence and normality before the next crash.  Not all disabilities are visible. ----------------------- 🌟 ChronicallyHopeful.com ----------------------- #pwme #mecfs #severeme #invisibledisabilitiesweek #spoonie #chronicillness #spoonielife

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