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#gomadforrohhad

Posts tagged as #gomadforrohhad on Instagram

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Ladies Ladies Ladies do we have a night planned for YOU! 🙈😍 Check out our poster below 👌 for details about our Charity Ladies Night  Your evening includes - Party all Night with Gracious Partys - Strip Show with the Sassy Boys - Delicious Buffet - A few little surprises - Some fabulous prizes to be won on the night and more..... All this for only £15 - Venue at the Renton Bowling Club Saturday 8th of June 7pm  Go On Treat  yourself to a night out with the girls you know you want to 😘  Call Lisa now on 07917225276 to book your tickets this is going to be a fab night for all who go along 🙌🏼👌 All proceeds will help us #findacure for all of our beautiful children battling ROHHAD Syndrome.  #gomadforrohhad and helps us Find A Cure 🙌🏼💪
💛💙💜💚❤ #repost @robertdowneyjr • • • • • • Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness -------------------------------
This evening  is Rare Disease Day Conference at Scottish Parliament our trustees Louise Wilson and Lisa Hunter are en route just now travelling from Balloch to Edinburgh raising awareness for #rohhad 👌 #gomadforrohhad #missionfindacure
#repost @robertdowneyjr  A real superhero stands up for those who are vulnerable and suffering. Well-known celebrity and Iron Man @robertdowneyjr teamed up with Aaron Hunter to help raise awareness for the children who suffer from the extremely rare, life threatening and life limiting disease ROHHAD.  Together they hope to raise funds to help researchers in America, Canada, Italy and the UK , understand the disease, improve treatments and hopefully one day find a cure.  Watch the video - shared on our Facebook page.  Thank you #teamdowney for #showingyourrare 💙  Credits: @mo_freek and @jimmy_rich from #teamdowney
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness @robertdowneyjr @doubleuayne  #🃏comicsweaties©📙
Aaron and family! - #robertdowneyjr @robertdowneyjr #doctordollitle #gomadforrohhad #teamdowney
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Reposted from @teamdowney1965 -  Today is Rare Disease Day 2019 - Real hero right there. Everyone deserves hope.. Aaron, You are not alone. - I asked everyone please pray for this child please pray for all the children ! -  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness @rohhad_association_charity #thankyou #teamdowney #family  #susandowney @robertdowneyjr @jimmy_rich 📹 - #regrann
Rapid-onset fedme med hypotalamisk dysfunktion, hypoventilation og autonom dysregulering (ROHHAD) er en sjælden lidelse med abnormiteter i vejrtrækning (hypoventilation), det endokrine system og det autonome nervesystem (ANS). ANS er en del af nervesystemet, der styrer de ufrivillige kroppsfunktioner. Derfor virker det 'automatisk' for at kontrollere vejrtrækning, hjerteslag, fordøjelse, blandt mange andre ting. ROHHAD blev først beskrevet i 1965, og siden da er kun 75 børn blevet rapporteret i litteraturen med denne lidelse. På grund af den høje forekomst af kardiorespiratorisk arrestering er tidlig anerkendelse og behandling af symptomer forbundet med ROHHAD afgørende. #rohhad #rarediseaseday #sjældnedag #rohhadassociation #danmark #syg #kronisksyg #cronicdiseases #gomadforrohhad #findacure #rohhadawareness #rohhadsyndrome #rohhadsucks #syndrome #fact #chances #diagnosed #1in73milluon
Rapid-onset fedme med hypotalamisk dysfunktion, hypoventilation og autonom dysregulering (ROHHAD) er en sjælden lidelse med abnormiteter i vejrtrækning (hypoventilation), det endokrine system og det autonome nervesystem (ANS). ANS er en del af nervesystemet, der styrer de ufrivillige kroppsfunktioner. Derfor virker det 'automatisk' for at kontrollere vejrtrækning, hjerteslag, fordøjelse, blandt mange andre ting. ROHHAD blev først beskrevet i 1965, og siden da er kun 75 børn blevet rapporteret i litteraturen med denne lidelse. På grund af den høje forekomst af kardiorespiratorisk arrestering er tidlig anerkendelse og behandling af symptomer forbundet med ROHHAD afgørende. #rohhad #rarediseaseday #sjældnedag #rohhadassociation #danmark #syg #kronisksyg #cronicdiseases #gomadforrohhad #findacure #rohhadawareness #rohhadsyndrome #rohhadsucks #syndrome #fact #chances #diagnosed #1in73million
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#repost credit to @robertdowneyjr Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness #thor #loki #wintersoldier #buckybarnes #tomhiddleston #markruffalo  #captainamerica #mcu #marvel  #steverogers #chrisevans #valkyrie #infinitywar #teamcap #thorragnarok #captainamericacivilwar  #ironman #blackpanther #blackwidow
#repost @imironstark • • • • • Today is Rare Dissease Day 2019. Please watch the video. https://youtu.be/a-jXa5yzRNc  #rarereality #shareyourrare #showyoucare #raredisseaday #gomadforrohhad #missionfindacure #rohhadawareness #robertdowneyjr #rdj #teamdowney #teamstark #avengersendgame #endgame @robertdowneyjr @rohhad_association_charity @jimmy_rich @mo_freek
#repost of @robertdowneyjr ----- Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
I had to repost @robertdowneyjr PLEASE go to his bio and watch the video. Help spread the awareness #godbless #prayingforacure #spreadawareness #shareyourrare #showyoucare #icare #rarediseaseday #2019 #gomadforrohhad  #gomadjumpforrohhad #jumpinamudpuddle #mudpuddles #mudpuddle #jump #missionfindacure #rohhadawareness #ironman #thankyou #robetdowneyjr for raising this awareness! 😘 I can’t believe how low some of these hashtags are for this 💔 let’s #spreadtheword #childernoftheworld
Sjældne dag.  Jeg har en mega sjælden sygdom Rohhad, som under 100 i verden har. Jeg er den ældste nulevende med sygdommen. Man død ofte først i 20’erne, og jeg er nu 28 år. Jeg føler mig meget heldig  Rapid-onset fedme med hypotalamisk dysfunktion, hypoventilation og autonom dysregulering (ROHHAD) er en sjælden lidelse med abnormiteter i vejrtrækning (hypoventilation), det endokrine system og det autonome nervesystem (ANS). ANS er en del af nervesystemet, der styrer de ufrivillige kroppsfunktioner. Derfor virker det 'automatisk' for at kontrollere vejrtrækning, hjerteslag, fordøjelse, blandt mange andre ting. ROHHAD blev først beskrevet i 1965, og siden da er kun 75 børn blevet rapporteret i litteraturen med denne lidelse. På grund af den høje forekomst af kardiorespiratorisk arrestering er tidlig anerkendelse og behandling af symptomer forbundet med ROHHAD afgørende. #rohhad #rarediseaseday #sjældnedag #rohhadassociation #danmark #syg #kronisksyg #cronicdiseases #gomadforrohhad #findacure #rohhadawareness #rohhadsyndrome #rohhadsucks #syndrome
Today is Rare Dissease Day 2019. Please watch the video. https://youtu.be/a-jXa5yzRNc ••• #rarereality #shareyourrare #showyoucare #raredisseaday #gomadforrohhad #missionfindacure #rohhadawareness #robertdowneyjr #rdj #teamdowney #teamstark #avengersendgame #endgame @robertdowneyjr @rohhad_association_charity @jimmy_rich @mo_freek
@robertdowneyjr post/📸 ➡️ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#new post of #robertdowneyjr in his ig, Good Morning y'all.. Have a fun day 😋♥️---Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Reposted from @robertdowneyjr -  Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness - #regrann
#repost @robertdowneyjr with @get_repost ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Today is Rare Disease Day 2019 - Real hero right there. Everyone deserves hope.. Aaron, You are not alone. - I asked everyone please pray for this child please pray for all the children ! -  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness @rohhad_association_charity #thankyou #teamdowney #family  #susandowney @robertdowneyjr @jimmy_rich 📹
#repost @robertdowneyjr ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Good Morning. Z😙😙😙 From @robertdowneyjr -  Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness - #regrann
#repost @robertdowneyjr with @repostsaveapp + ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
#repost @robertdowneyjr • • • • • • Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness * Absolute golden heart 💛💛💛 #robertdowneyjr #rdj #sherlockholmes #ironman #tonystark #thejudge #tropicthunder #chaplin #marvel #avengers #charities #goldenheart #robertdowneytease
#repost @robertdowneyjr ・・・ Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting rare disease ROHHAD. Please watch the video... Link in my bio ⬆️... The Awareness video was made with the help of  @mo_freek and @jimmy_rich from #teamdowney ... It has been created to help raise awareness so please share this today for the children as this is their #rarereality ... Please #shareyourrare and #showyoucare  #rarediseaseday #2019 #gomadforrohhad #missionfindacure #rohhadawareness
Posted by @robertdowneyjr  #selfieoftheyearofficial  Hello all. With our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad ... Donate just $10 bux(LINK IN BIO)to win a trip to #hollywood and witness @marvelstudios #avengersinfinitywar with me and the rest of the #mcu ... Proceeds are going to benefit the @rohhad_association_charity and @briantcity #brianortegafoundation ... The more times you enter the better the chance of winning ... See you there !#randomactfunding #teamstark #runonsentencegalore #love #instagood #photooftheday #girl #beautiful #picoftheday #bestoftheday #instalike #smile #fun #me #cute #follow #like #tbt #followme #happy #summer #igers #instadaily #selfie
The shirts we want to give @robertdowneyjr and Susan at A4 came in!  Fingers crossed we can get lucky enough, but if not, we'll keep trying... . . THANK YOU guys for helping us raise over $1k for Aaron and @rohhad_association_charity last fall!  This was an INCREDIBLE outcome and @robertdorkneyjr and I are still speechless that the #ducklings made that goal happen!  The proceeds have been donated to the organization! . . 🙏 Prayers for Aaron tomorrow...we really hope his surgery finally works out! 💜 . . #ducklingfanproject ducklingfanproject.com . . #cosplay #teamdowney #ironman #costume #charity #donations #rdj #robertdowneyjr #tonystark #marvel #avengers #project #ducklings #gomadjumpforrohhad #gomadforrohhad #rohhad @therussobrothers
If any of our Incredible supporters are having setting up a donate now button on Facebook to raise funds for their favourite charity on their birthday this year please choose us 👌🎉 THANKS in Advance ❤️ #gomadforrohhad #birthdaydonations
It's A New Year 🎉 Bring on 2019 😁  Are you looking to make a difference this year ?! Are you looking for something physically challenging to do ?  Have you seen our #zerotohero challenge ?! Click the link for more info 👌 this is the only challenge that puts you in control !  You choose When  You choose Where You choose Your Distance  You choose Your Sport  You raise Awareness and Funds to help #findacure for ROHHAD children and  You can do this anywhere in the world 🌎  So don't delay ! Check it out and sign up via our website today and #gomadforrohhad  and become a #rohhadavenger  Link is in our bio 👌🙌🏼 http://www.rohhadassociation.com/?page_id=1113
https://www.trybooking.co.uk/4866  Can all friends and family please help share this thanks  Calling all Rangers Football Club Fans and Supporters!  Raffle closes this Friday only 4 more days left to enter. Please share with friends and family you think may want to enter 👌  At only £2.50 per entry or 3 entries for the price of 2 (£5.00) you could win yourself this seasons Autographed Shirt or Football.  Both are fantastic Prizes and have been kindly donated in full by the Club.  Meaning that all of your ticket money will go towards helping find a cure for all of the ROHHAD Children.  Special thanks to Chris Wilson and Rangers Football club for donating these prizes to our annual Christmas Raffle we deeply appreciate the support.  Click the Link to enter today and please share with any friends and family you think may want to enter.  Entry to the raffle is open now and closes on Friday the 21st  of December at 7pm.  The Draw will take place LIVE on our Facebook page on Saturday the 22nd of December at 2pm (subject to change we will notify you if the time changes or if we have technical difficulties)  All Terms and Conditions are available on trybooking  #gomadforrohhad #rfcchristmasraffle
Meeting Last Night at the charity office with our trustees and it was fantastic the ideas were flowing and even though 2018 is almost over we have so many amazing things planned for next year that it's hard not to get excited 🙌🏼😃 can't wait to share them all with you ! A little preview of the things we have planned will be coming soon 😜 but for now there is still time to get involved this year and help ?! Shopping for Christmas 🎄 visit Amazon Smile UK and choose ROHHAD Association as the charity to benefit Amazon make the donation on your behalf 🙌🏼 We have bag packing at the co-op in Balloch on the 29th of December !  We will be heading to our Ambassadors Panto this season for some bucket bashing at The Greenock Arts Centre (more to follow on this soon)  We have our Christmas Raffle for all of Rangers Football Club fans  You can sign up for our #zerotohero challenge next year or our #gomadwaxforrohhad challenge !! 🙈🙊 We have our ladies Night in early spring and more so much more ..... If none of the above is jumping out at you then why not think about organising your own fundraiser in 2019 give us a call or email and we can support your event 👌🙌🏼 Whatever you do decide on just please #gomadforrohhad 😜and help us #findacure for the rohhad children ❤️
https://www.trybooking.co.uk/4866  Calling all Rangers Football Club Fans and Supporters!  Check out our annual Christmas Football Raffle  At only £2.50 per entry or 3 entries for the price of 2 (£5.00) you could win yourself this seasons Autographed Shirt or Football.  Both are fantastic Prizes and have been kindly donated in full by the Club.  Meaning that all of your ticket money will go towards helping find a cure for all of the ROHHAD Children.  Last year our annual Christmas Raffle was one for Celtic Football Club fans and this year thanks to Rangers Football Club and supporter of the charity Chris Wilson our annual Christmas Raffle is one for all RFC Fans.  We deeply appreciate the support from both of Glasgow biggest football teams.  Click the Link in our bio to enter today and please share with any friends and family you think may want to enter.  Entry to the raffle is open now and closes on Friday the 22nd of December at 7pm.  The Draw will take place LIVE on our Facebook page on Saturday the 23rd of December at 2pm (subject to change we will notify you if the time changes or if we have technical difficulties)  All Terms and Conditions are available on trybooking  #gomadforrohhad #rfcchristmasraffle
Hey guys - so this is what the back of Robert's shirt will look like!  Shirts are still available but space for only about ten more names!  Trust me, if you want Robert to know you participated, go donate and grab your own shirt!  I cannot stress that enough.  We are SO close to hitting our goal! . . Proceeds benefit ROHHAD.  Ends 12/1. Link in bio. . . Ducklingfanproject.com #ducklingfanproject . . #cosplay #pepper #pepperpotts #ironman #tonystark #stark #marvel #peppercosplay #costume #gwynethpaltrow #robertdowneyjr #infinitywar @robertdowneyjr #avengers #pepperony #10yearsofironman #starsofcosplay #extremis #extremispepper #ironmancosplay #pepperpottscosplay #rescuecosplay #gomadforrohhad #rohhad #charity #donate #cosplayersofinstagram #dolittle #sherlockholmes
We are delighted to officially announce that the ROHHAD Association is now OPEN to proposals for funding for Medical Research into ROHHAD Syndrome.  The available funding for 2019/2020 research grants is a staggering £275,000.00 which would not have been possible without the help of all of our incredible supporters, our inspiring children their families and their friends.  Each and everyone of you have contributed and we couldn't have done it without you.  We want to say a MASSIVE THANK YOU to you all and also to our charities special friend @robertdowneyjr and all of his amazing fans the ducklings 🐥 whom helped us immensely with raising awareness, funds and the #gomadforrohhad campaign.  Fulfilling Aaron Hunters Wish to help raise awareness and funds to #findacure for his friends all around the world battling the Evil ROHHAD  Applications for funding closes on the 1st of February 2019 and we hope to be supporting ROHHAD Research Financially by April 2019.  We will keep you all updated on the progress of ROHHAD Research as this moves forward.  Please click the link to view our charities Research Strategy and also the criteria for this coming years funding proposals.  The Strategy and ROHHAD Research Priorities were created in consultation with the families affected by ROHHAD Syndrome.  http://www.rohhadassociation.com/?page_id=513  We hope that we can rely on your support now and in the future to ensure that one day we do indeed Find A Cure 🙏🏻🙌🏼
Aaron got his shirts!! He looks amazing, and on his birthday, too!  Happy birthday, dude! ❤ . . Want your own shirt?  Visit the link in my bio for more info!  Names of donators will be put on the shirts we are gifting Robert and Susan!  Proceeds benefit @rohhad_association_charity. . . Ducklingfanproject.com #ducklingfanproject . . #cosplay #pepper #pepperpotts #ironman #tonystark #stark #marvel #peppercosplay #costume #gwynethpaltrow #robertdowneyjr #infinitywar @robertdowneyjr #avengers #pepperony #10yearsofironman #starsofcosplay #extremis #extremispepper #ironmancosplay #pepperpottscosplay #rescuecosplay #gomadforrohhad #rohhad #charity #donate #cosplayersofinstagram #dolittle #sherlockholmes
Only one more week left on the red and gold shirts!  Get yours and get your name on #teamdowney's gift by donating!  Proceeds benefit @rohhad_association_charity ❤ . . Available until 11/1. Ducklingfanproject.com (link in bio) #ducklingfanproject . . #cosplay #pepper #pepperpotts #ironman #tonystark #stark #marvel #peppercosplay #costume #gwynethpaltrow #robertdowneyjr #infinitywar @robertdowneyjr #avengers #pepperony #10yearsofironman #starsofcosplay #extremis #extremispepper #ironmancosplay #pepperpottscosplay #rescuecosplay #gomadforrohhad #rohhad #charity #donate #cosplayersofinstagram #dolittle #sherlockholmes
*NEW* Fun things happening with this fan project!  We revamped the website and we're adding a red and gold shirt until 11/11 (US, Canada, and Japan only)! Get your name on Robert and Susan's gift and get your own at ducklingfanproject.com (or the link in @robertdorkneyjr's bio). All proceeds benefit @rohhad_association_charity! #ducklingfanproject . . Photo edited by: @robertdorkneyjr . . #cosplay #pepper #pepperpotts #ironman #tonystark #stark #marvel #peppercosplay #costume #gwynethpaltrow #robertdowneyjr #infinitywar @robertdowneyjr #avengers #pepperony #10yearsofironman #starsofcosplay #extremis #extremispepper #ironmancosplay #pepperpottscosplay #rescuecosplay #gomadforrohhad #rohhad #charity #donate #cosplayersofinstagram #dolittle #sherlockholmes #sherlock
Friendly reminder that we're creating a fandom gift for this small weirdo and his wife!  Go to DucklingFanProject.com before 12/1 (or visit the link in @robertdorkneyjr's profile) to participate!  You can get your name on his gift and get your own shirt, as well! ❤  All proceeds benefit @rohhad_association_charity, who Roberto and Susan work with. 🤗  We have had so many awesome people participate, and even if you don't get a shirt, every little bit helps! $5, $10, $15, $35...consider donating to help us reach our goal, and if you can't donate, PLEASE SHARE! 😁 (Shoutout to @rdjthegenius for this edit [no, Robert does not have these shirts YET, but we'll be sending him his soon!]) . . Second 📸 Brandon Klinge . . #cosplay #pepper #pepperpotts #ironman #tonystark #stark #marvel #peppercosplay #costume #gwynethpaltrow #robertdowneyjr #infinitywar #rescue #avengers #pepperony #10yearsofironman #starsofcosplay  #extremispepper #ironmancosplay #pepperpottscosplay #rescuecosplay  #pittsburgh #pittsburghironman #cosplayersofinstagram #costume #dolittle #sherlockholmes #sherlock #charity #rohhad #gomadforrohhad
Even $5 helps! Donate to get your name on the list, the gifted shirt, or get your own shirt!  All proceeds are going to our buddy Aaron (ROHHAD). . . DucklingFanProject.com #ducklingfanproject . . 📸 Brandon Klinge . . #charity #teamdowney #robertdowneyjr #rdj #susandowney #fan #project #tshirt #donate #rohhad #gomadforrohhad
Looking for a big fitness challenge ? Want to make a difference & help the ROHHAD children ? How about the @westhighlandway #gomadforrohhad and join our Team in April next year visit our charity FB page click the link in our bio to find out more ! 👌
Hello all. With our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad ... Donate just $10 bux(LINK IN BIO)to win a trip to #hollywood and witness @marvelstudios #avengersinfinitywar with me and the rest of the #mcu ... Proceeds are going to benefit the @rohhad_association_charity and @briantcity #brianortegafoundation ... The more times you enter the better the chance of winning ... See you there !#randomactfunding #teamstark #runonsentencegalore
Our Inspiration and our whole reason for our Charity 👇🏼💞. Please watch the video in our bio of our Inspiration!  We want to apologise for being a little quieter than normal on our social media our family has had to take priority the past few weeks as both Aaron and his sister are very sick but that doesn't mean we ever stop thinking about all of the amazing children around the world who are fighting the cruel and evil ROHHAD!  We have some amazing fundraisers coming up and some great plans ahead for more awareness and we need all of YOU to HELP we can't do it without YOU! We will be sharing all of our plans over the coming week but we wanted to share with you our reasons for founding the ROHHAD Association.  Every child who has ever fought and is still fighting ROHHAD. 💞 please continue to support them and us as we fight hard to #findacure  #gomadforrohhad #rohhadavengers
Do YOU work for a company that chooses a charity to support annually ? or Do YOU Own a company that choose a charity to support annually ?  If you answered yes to either question Can YOU Please help us ?  We would love this kind of support which often doesn't happen for smaller charities like our own but we would love the opportunity for something like this to happen.  It could really make a huge difference to sustaining ROHHAD Research and helping to #findacure for our ROHHAD children.  Please speak to your boss or find out how we can apply ! Or consider us if it's your own company.  #gomadforrohhad Today and help us if you can ! Get in touch with us if you think you can make this kind of difference thanks 👌
I am so honoured to have been one of the mediums to be considered and invited along to raise funds for this heartfelt cause, The ROHHAD Association. I must admit that when Aaron's lovely mum Lisa asked me to support this fundraising night, I had no idea what ROHHAD was. I took to the internet to find out more. For those of us who have children you know that they are your very reason for breathing, to then be told your child has a terminal illness must be every parents worst nightmare let alone be told their condition is so rare it affects 100 children worldwide. That certainly for one, made me more determined to do the best I could alongside three other great mediums supporting the same cause.  Tonight, alongside Joanne Davies, Barry Hogg and Ricky Martin, I am not only honoured to be trusted to be part of this fundraiser but delighted at how much has been raised - £1740. As Aaron's fantastic mum Lisa Hunter says, when you are raising for charity, please consider those who are small and need all the help they can get.  Many thanks and much love to those who came along to support this event ❤️ #mediumship #psychicevent  #spiritcommunication  #psychic  #fundraising #charityevent #gomadforrohhad
Sorry not been on Insta this past week as it was holiday time for our Trustees ! Back to working really hard now and we still have tickets for our next fundraiser call or visit trybooking.co.uk/FIN to book your tickets now 👌 #gomadforrohhad #charitypsychicnight
@robertdowneyjr kicked this off, check him out as well as @rohhad_association_charity. What say you? Will you please #gomadforrohhad @prattprattpratt @chrishemsworth @renner4real @imsebastianstan @elizabetholsenofficial @paulbettany @chadwickboseman @michael_rooker @michaelbjordan @letitiawright @winstoncduke @clarkgregg @mingna_wen @lil_henstridge @iain_decaestecker @realhenrysimmons @chloebennet Thank y'all so much. ✌🏼💙💚💛💜
@rohhad_association_charity post ➡️ Something magical happened today Barry the Cat @barrythecat73 THEE most talented street artist in the UK 🙌🏼 came along and painted our charity head office in a way that Aaron and all of team #rohhadavengers would truly appreciate 👌 and we reckon it it's pretty incredible 🙌🏼😀 We have been so excited all day to see the finished wall ! and all of team ROHHAD cannot wait to get to work in our new little Stark Tower !! 😜  MASSIVE THANK YOU to Barry who donated his time and artistic talent and  spent 8 hours in the heat creating our own Iron Man special thanks to Allan Wilson and Elaine Telfor, Allan reached out to Barry to organise this surprise for Asron and Elaine donated the paint.  We reckon Aarons Special Friend @robertdowneyjr will absolutely love this ❤️ we know we do !! #gomadforrohhad 👌 ... #robertdowneyjr #teamrdj
Something magical happened today Barry the Cat @barrythecat73 THEE most talented street artist in the UK 🙌🏼 came along and painted our charity head office in a way that Aaron and all of team #rohhadavengers would truly appreciate 👌 and we reckon it it's pretty incredible 🙌🏼😀 We have been so excited all day to see the finished wall ! and all of team ROHHAD cannot wait to get to work in our new little Stark Tower !! 😜  MASSIVE THANK YOU to Barry who donated his time and artistic talent and  spent 8 hours in the heat creating our own Iron Man special thanks to Allan Wilson and Elaine Telfor, Allan reached out to Barry to organise this surprise for Asron and Elaine donated the paint.  We reckon Aarons Special Friend @robertdowneyjr will absolutely love this ❤️ we know we do !! #gomadforrohhad 👌
A few of our families, the children and friends of the charity are taking on our fabulous sports challenge #zerotohero this Month and we are so grateful and proud of them all. Yesterday one of our little Heroes Aaron completed almost another 4km of his full 25km challenge he has less than 18km to complete now and is doing well even though he has had to do most of it in his wheelchair and stop early on days due to not being able to maintain his body temperature.  Aaron is working so hard at this despite the challenges ROHHAD throws at him.  Today his blood results were off and he is now Anaemic too but he is determined to do more of his challenge tomorrow 🙌🏼👏🏻. Everyone taking part is determined to make a difference and help #findacure please give what you can to help donate via this link here and become a ROHHAD Avenger 🙌🏼❤️ https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=LisaHunter6&pageUrl=7  #gomadforrohhad  #rohhadheroes #ourkidsaretherealheroes  #togetherwewillmakeadifference "Can all those taking part in the challenge please tag the charity in your posts and we will share your pages"  GOOD LUCK to all and THANK YOU ❤️
Hello all. With our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad ... Donate just $10 bux(LINK IN BIO)to win a trip to #hollywood and witness @marvelstudios #avengersinfinitywar with me and the rest of the #mcu ... Proceeds are going to benefit the @rohhad_association_charity and @briantcity #brianortegafoundation ... The more times you enter the better the chance of winning ... See you there !#randomactfunding #teamstark #runonsentencegalore
Tickets on Sale Now for all 3 of our upcoming events ! Contact the Charity Office today either via PM or call 07917225276. You can pay online or collect from the office 👍🏻 Charity Psychic Night - Thursday the 2nd of August, Denny Civic Theatre, 6.30pm - £10pp  Charity Golf Tournament - Friday 31st of August, Cowglen Golf Club, £150 per team of 4  Family Halloween Disco - Saturday 27th October, Renton Bowling Club family of 4 for £20 👍🏻 #gomadforrohhad and join us at one of our upcoming events 😃
We are absolutely delighted to share with you all how successful our Annual Charity Ball was.  This year the Ball raised in total £7080.35 🙌🏼🎉👏🏻 and after running costs we now have a further £4729.35  that will be used to fund Medical Research towards finding a cure for all of the children battling ROHHAD Syndrome.  We would like to say a massive thank you to each and everyone of you who came along to our annual ball and helped us reach this incredible amount❤️ A special thank you to our sponsors who helped ensure the night was spectacular!, The Alea Glasgow Casino, Lauren Moffat and her amazing team, Gracious Partys Stephen Dunn, JJR Print Ltd, TCB Photography Pamela and Michael and the amazing All Dressed Up ❤️ To our Incredible Ambassadors, Hosts and Performers for the evening, Lee Samuel Emily Middlemas, Jane McCarry, Mark Cox, Dean Alexander, Chris Henry - Comedian and Michael Dineen ; each of you helped make the evening one to remember so thank you very much.  To everyone who donated a raffle prize what a night it was for winning ! The Prizes were Amazing 🙌🏼 The professional photographs will be available within the next few weeks and we will share the link to them via our social media pages.  All of us at team ROHHAD Association are so deeply grateful to you all and we hope that everyone of you had the most amazing night.  Together we will find a cure  THANK YOU! And Same time next year everyone ?! 🙌🏼❤️ #gomadforrohhad #nottoraretocare #missionfindacure
Marvel cast signed jacket @vindiesel @robertdowneyjr  @rohhad_association_charity @charitybuzz  #gomadforrohhad  #iwannabegroot
Regrann from @team_downey_1965 -  Wow, Marvel cast signed jacket. - -  Cre: @vindiesel - -  #robertdowneyjr @robertdowneyjr #signed #marvel #iwannabegroot @rohhad_association_charity #gomadforrohhad - #regrann
"Hi Everyone it's Me Aaron Hunter !  THANK YOU SO MUCH TO everybody who has helped Me and IronMan so far raise awareness and money to fund a cure for my friends with ROHHAD ! "  Have you seen the GROOT jacket that you can win by bidding at @charitybuzz it was donated by @robertdowneyjr and @vindiesel  click on the link on our charity page BIO !  As Aaron says "Check It Out " and together we will #findacure  Swipe Left for Robert and Vins Video appeals ! And click the link in the BIO To BID  Aaron has not been feeling quite himself lately, he has been very poorly and spent the week in hospital but he was determined to make a thank you video to everyone and do his little bit to Help ! 👏🏻🙌🏼👌💞 #gomadforrohhad
It's the weekend 🙌🏼 woohoo !  Have you seen the awesome Auction that @vindiesel and @robertdowneyjr have running with the fabulous @charitybuzz in Aid of the rohhad kids ? If not click the link in our BIO !! Aaron will be making a special little video message for you all later today he has been quite sick this past week and spent all week in hospital but home for the weekend and determined to do his bit to help raise awareness and funds for a cure for his special friends keep watching later today 👌  #gomadforrohhad #iwannabegroot #bidatcharitybuzz #weekendfun 🙌🏼👌
Good Evening we are absolutely delighted to share with you all how successful our Annual Charity Ball was.  This year the Ball raised in total £7080.35 🙌🏼🎉👏🏻 and after running costs we now have a further £4729.35  that will be used to fund Medical Research towards finding a cure for all of the children battling ROHHAD Syndrome.  We would like to say a massive thank you to each and everyone of you who came along to our annual ball and helped us reach this incredible amount❤️ A special thank you to our sponsors who helped ensure the night was spectacular!, The Alea Glasgow Casino, Lauren Moffat and her amazing team, Gracious Partys Stephen Dunn, JJR Print Ltd, TCB Photography Pamela and Michael and the amazing All Dressed Up ❤️ To our Incredible Ambassadors, Hosts and Performers for the evening, @lee_samuel @emilymiddlemas_ , Jane McCarry, Mark Cox, Dean Alexander, @mrchrishenry and Michael Dineen each of you helped make the evening one to remember so thank you very much.  To everyone who donated a raffle prize what a night it was for winning ! The Prizes were Amazing 🙌🏼 The professional photographs will be available within the next few weeks and we will share the link to them via our social media pages.  All of us at team ROHHAD Association are so deeply grateful to you all and we hope that everyone of you had the most amazing night.  Together we will find a cure  THANK YOU! And Same time next year everyone ?! 🙌🏼❤️ #gomadforrohhad #nottoraretocare #missionfindacure
🙌🏼❤️ MASSIVE THANK YOU to @vindiesel and @robertdowneyjr for your incredible support and love for Aaron and his hope to find a cure for all of his special friends fighting for their lives against this awful disease ROHHAD.  All of the families and the children affected are deeply grateful to you both for this support not only will it help with the medical research but the hope and awareness this brings for the children affected is immeasurable.  Thank you for filling the children with HOPE ! ❤️ Oh and  this jacket is quite possibly the most awesome jacket on the planet whoever wins the bidding for it is one lucky ..... 👌🙌🏼 #gomadforrohhad #findacure  Link to Bid can be found in our bio !!
Super Excited 🎉😁 keep watching our social media and also @charitybuzz social media pages from 8pm GMT onwards this evening such an incredible opportunity for all Groot @vindiesel and @marvel Fans 🙌🏼 Aaron is so excited and so grateful for the incredible support from his favourite heroes and all of you too !  we can't wait for you to see the way in which they are continuing to help 👌🙌🏼 #gomadforrohhad #missionfindacure and as our good friend @robertdowneyjr has said together we will find a cure 💞
Team #aaronsavengers took on Ben Lomond for their #zerotohero challenge  Congratulations to Ian (Aarons Dad) Stephen Katie Colleen and our little superstars Amy and Elise  What a great achievement 💪🙌🏼👏🏻 So proud of you all please show your support and help us in our mission to #findacure by sponsoring this team. You can click the link in the bio and donate via www.rohhadassociation.com  Thanks to all who do and super well done again to this Team 🙌🏼👏🏻 #gomadforrohhad
#zerotohero many of our supporters and families are doing our Awesome sporting challenge this month and here is Our little Hero AaronMan 💪👌 Out of his wheelchair for some of his sponsored walk!! Super Proud of his efforts 🙌🏼😍 he isn't able to come out of his chair often when outside and can't walk very far but yesterday he made a massive effort and managed to walk a little he is determined to do all he can to help raise funds to #findacure to sponsor Aaron visit our charity websites and make a donation today at www.rohhadassociation.com  Thanks for your support  #gomadforrohhad today and help us #findacure
Still tickets available for our spectacular annual Charity Ball please call 07917225276 to book your tickets now only a few tables left so call today !  Special Offer of 2 for the Price of 1 on all tickets (cost now £60 per person) 👌  #gomadforrohhad
Aarons mum shared this on Facebook this morning we thought we would share with you all !! How awesome is Aaron 💪❤️ "Oh my heart this morning ! This boy of mine sure knows how to melt it he said this morning "Mum I had a dream that IronMan and Me well we got the Time Stone of Thanos and we went to the future and we found the cure for ROHHAD then we brought it back again and made all my friends better" 😭😍 Thanos better watch out I thought AaronMan and IronMan are both coming for you 😜  Then .... "But I know it's just a dream and not real but I hope it means that me and Robert  will find a cure together"  Wow ! Hearts in pieces and now he is sitting googling what foods have a lot of Iron in them because he is aneamic just now (lost a little blood)  and wants to help his blood to get better before his operation, he knows he will be getting medicine but wants to help himself too - WOW just WOW he is so smart and clever and I honestly at times wonder how on earth Ian Hunter and I managed to produce this kid !  #aaronman #blessedmum #mysonmyhero"  #gomadforrohhad and help Aaron and @robertdowneyjr find a cure donate via the charity website (link in the bio) www.rohhadassociation.com ❤️
A few of our families, the children and friends of the charity are taking on our fabulous sports challenge #zerotohero this Month and we are so grateful and proud of them all. Yesterday one of our little Heroes Aaron completed almost another 4km of his full 25km challenge he has less than 18km to complete now and is doing well even though he has had to do most of it in his wheelchair and stop early on days due to not being able to maintain his body temperature.  Aaron is working so hard at this despite the challenges ROHHAD throws at him.  Today his blood results were off and he is now Anaemic too but he is determined to do more of his challenge tomorrow 🙌🏼👏🏻. Everyone taking part is determined to make a difference and help #findacure please give what you can to help donate via this link here and become a ROHHAD Avenger 🙌🏼❤️ https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=LisaHunter6&pageUrl=7  #gomadforrohhad  #rohhadheroes #ourkidsaretherealheroes  #togetherwewillmakeadifference "Can all those taking part in the challenge please tag the charity in your posts and we will share your pages"  GOOD LUCK to all and THANK YOU ❤️
#new Robert Downey Jr with Aaron's Family.. #gomadforrohhad
Hey Aaron, having a bit of bother at work with a broken toilet today so had to get the big hammer out , and we were thinking we know this one works a treat with lightning but do you think it might be able to bring a little rain so we can do our #gomadjumpforrohhad challenge 👍 #gomadforrohhad @rohhad_association_charity
Go Mad For Rohhad Challenge! #gomadforrohhad #avengersinfinitywar #randomactfunding #dance #marvel #comics #gomadjumpforrohhad @rohhad_association_charity @twhiddleston @imsebastianstan @marvelstudios @therealstanlee @tomholland2013 @prattprattpratt @chadwickboseman @michaelbjordan @chrishemsworth @robertdowneyjr @vancityreynolds @christopher.jmartinez @6543max @mrsgerb @itsmailyn @timothy_ruiz @allyycat_ @essauceay @santos.ruiz.18041 @sjayr96 @mattsteffanina @robertdowneyjr @essaucey
Good morning guys! The campaign is closing soon so if you haven’t yet, please donate $10 or more in crowdrise.com/rdj to help @rohhad_association_charity, (is a chance to go to the Infinity War Premiere in Hollywood as Robert’s guest) The more you donate the better are the odds! Also if you can, please do the #gomadjumpforrohhad challenge since it’s Aaron’s wish 💪🏼💛 — #robertdowneyjr #gomadforrohhad #findacure #🙏🏼

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