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Posts tagged as #chronicillness on Instagram

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I've been feeling this way A LOT this week. Not sure if it's the weather changing, or if I'm just going through a little exacerbation, but I've literally been this turtle every single day (or at least that's how it feels). 🐒 • So here's to restful days, or day. (until Thanksgiving, Emma's Drama Showcase, and the impending bathroom reno 🀦‍♀️). And here's hoping that a small amount of energy will magically return ASAP! 🀞 • #thefatigueisreal #mymsjourney #multiplesclerosis #mswarrior #chronicillness #chronicwarrior #autoimmunedisease #choosehappiness #babewithamobilityaid #thisisms #msawareness #curems • #repost @theunchargeables (@get_repost) ・・・ Sending you all extra spoons and gentle hugsπŸ€—
Last day is yogis choice. Dancer is always a nice go to... here is a non-filter pic. Many ask for no filter shots. Hard to not put an artistic tweak on my pics but total envy being natural. I need to build confidence to accept myself in the raw. I do not have a probably though posing in my comfy oversized sweats, Sunday lounge t’s and sporting my kicks-  I’ll do my best. 😊😜 . . . . #creativeyogisunite day 7. Thank you host -  @faithfoxmama @nats.yoga.creative you were a huge inspiration and  sponsor @anastasiayogi @faithfoxdesigns @yogarecycled . . . . . . . .  #yogamom#yogi#yogisofinstagram#holistic#picoftheday#pictureoftheday#instagood#fitness#fitmoms#fitnessmotivation#inspiration#goodvibesonly#beautiful#mood#yogalove#igyoga#bodybuilding#gymlife#spoonie#yogadaily#chronicillness#yoga#igfit#healthylifestyle#yogagirl#dancerpose .
Don’t put up with negativity this thanksgiving. Your health is more important than anyone, family or not. #disabledandcute #disabled #potsie #fibromyalgia #fibro #fibrowarrior #chronicillness #chronicpain #chronic #invisibledisability
So update for anyone that cares.. I'm still swollen. It's fluctuating sometimes affecting my tongue and throat. It hasn't gone back to normal but it fluctuates from being swollen to really swollen hah. So after seeing the drs today they have been liasing with Brisbane immunologist we are going to do a few test. The tests are a 24hr urine collection to test for my histamine levels, a cat scan to make sure that there isn't anything sinister going on since I have had melanomas cut out and it'll check my lungs as well. Also doing an echo of my heart and blood test for my kidneys. Then I'm waiting for haematologists to come see me and talk about this test called c-kit (google it to get an understanding of what the test is) To do this test we have to do a bone marrow biopsoy so it's quite invasive. There's still the idea of transferring me as a private patient to Brisbane, Melbourne or Sydney so we will wait and see what happens with these tests first. Appreciate prayers that I'll get answers, I really need themπŸ˜” #chronicpain #chronicillness #autoimmunedisease #spoonie #hospitallife #tests #prayersappreciated #ineedanswers
marathon training day two βœŒπŸ»πŸ’• a successful three mile speed run!! πŸƒπŸ»‍β™€οΈπŸ’œ with NO music + only looked at my watch when i finished!! it was TOUGH but i felt ALIVE! πŸ’ͺπŸ»πŸ’—
The verdict is in: short hair it is
When people tell me they “don’t have time,” I simply..... . •Throw on my backpack (ya know, because I’m in grad school) πŸ“šπŸŽ’ •Scoop up my lunchbox (with all the meals and snacks I’ve already prepped for the week) πŸ₯—πŸ₯ͺπŸ• •Grab my water, energize, and chocolate shake (because ya girls too busy to not stay hydrated, have energy, and be full) πŸ’¦βš‘οΈπŸ« •Get my purse (because I gotta go to work full-time, pay bills, budget, plan, etc.) πŸ“ˆπŸ—“βœ‰οΈπŸ‘©πŸ»‍πŸ’»πŸ‘œ •Feed my dogs (because #dogmom) πŸΆπŸ˜‰ . And then walk out the door, because I don’t need that kind of negativity in my life and ain’t nobody got time for excuses! πŸ‘ŠπŸ»πŸ’πŸ»‍β™€οΈπŸ˜˜ . • • #healthjourney #gradschool #fulltimejob #coachlife #noexcuses #chronicillness #plantbased #autoimmune #spoonie #riseandgrind #weightloss #transformation #maketime #health #healthylifestyle
Putting ourselves into the healing process we are managing our symptoms and wounds so we are no longer controlled by those said problems. . . #just1woman #writer #woman #survivor #anxiety #depression #mentalhealth #chronicillness #symptoms #wounds #healing #actions #solutions #process #love #light #positivity  #repost from @human_eq ❀️
_______________________________________ #chronicpain#ednos#edsoldier#anorexia#anorexiarecovery#recovery#anxiety#ptsd#bipolardisorder#bipolartypetwo#bpd#eds#eds3#ehlersdanlossyndrome#pots#invisibleillness#chronicillness#selflove#anorexiarecovery#quoteoftheday#quote#childhoodemotionalneglect#traumarecovery#trauma
Yesterday was my Cardiologist follow up appointment, the one I wasn’t too happy to go to. I went there with the best possible attitude, as you can see in the picture. The picture was taken before seeing the doctor.  When the doctor came in, he asked me to give him any updates about my health since the last appointment. So I gave him the summary of my appointments with the Endocrinologist, Neurologist, Rheumatologist, Sleep specialist and Functional doctor.  On my last appointment, he suggested to start on Desmopressin for my POTS. But, a couple of days later he called personally to tell me not try it because he wanted to do more research and bloodwork. I followed his advice and did not try it.  Yesterday, he discarded the Desmopressin entirely as and option because it was too risky in my case. Honestly, I felt so much relief because I was kind of scared with the side effects of that medicine.  He suggested an out-of-the-box medicine to treat my POTS, that at the same time can target my Rheumatoid Arthritis. He did not feel comfortable with me starting Plaquenil yet. So he wants me to try the out-of-the-box medicine first. Last week, my Functional Doctor also recommended me the same out-of-the-box medicine. I noticed it once I got home and compared their prescriptions. Having both of them thinking in the same medicine and approach, kind of gives me a sense of relief and hope.  He told me my case was getting too complex because it was involving too many areas in general. He brought to the table the possibility that in the future I may need to try IVIG treatment. I wasn’t expecting to hear that from him, honestly. I was surprised and overwhelmed with all of the info. He told me that he has been reading and looking through some research papers, and talking to the doctors in charge of them, to get a better picture and understanding. He admitted he was learning through the process, because he is having more patients with similar symptoms to mine. So, the appointment
Exactly what I wanted for the holidays...NOT!! Seven months ago I was treated for right heel pain/plantar fasciitis. Two weeks ago it started again. Because of where the pain is located my doctor now thinks it could be a heel spur and ordered X-rays. If it’s a bone spur surgery could be in my future. If not, it may be Achilles Tendinitis or bursitis. To top it off I woke this morning with knee pain and swelling.  My doctor says Crocs are probably the best thing to wear as to not put pressure on the back of my heel. They may be kinda comfy but aren’t ranking high on the stylish list.  #chronicillness #chronicpain #heelspur #rheumatoidarthritis #rheumatoidarthritiswarrior #curearthritis #curearthritiscrew #arthritissucks #arthritisawareness #arthritisfoundation #arthritiswarrior #rawarrior #norheumforthis #chronicpainwarrior #chronicpainawareness #crocs #crocsandsocks #crocsandsocksrock #thespooniesisterhood #spoonie #spoonielife
Could you imagine Running πŸƒπŸΌ‍♀️ in the NYC marathon with @team_boomer_usa while having Cystic Fibrosis?? Then to top it all off directing πŸŽ₯ a documentary on another person with CF who climbed EVEREST?!? 🚨On Episode 58, We talk to a woman that did just those things!!!! Meredith Giato, a 26 year old Cystic Fibrosis fighter, joined us to chat all about her life with Cystic Fibrosis leading to her extravagant finish of the NYC Marathon with @team_boomer_usa . She talks about what impacted her the most doing the race and how she trained for the race. She then shared how “Breathing On Everest” ( @breathingoneverest )came to be and how she was able to direct the film while staying the United States. Meredith can’t wait to be finished with the documentary and share it with everyone. — To hear more about her NYC marathon experience & the “Breathing On Everest” Documentary, Head over to  @iTunes (link in our BIO; make sure to SUBSCRIBEβœ…, RATE⭐️⭐️⭐️⭐️⭐️, and REVIEWπŸ—£), if you’re an android listener head over to @soundcloud, and GunnarEsiason.com πŸ’πŸΌ‍β™‚οΈπŸ’πŸ»‍β™€οΈπŸ’πŸΌ‍♀️ — • • • #breatheinpod #breathein #breathe #cysticfibrosis #cf #curecf #bef #boomeresiasonfoundation #podcast #subscribe #like #review #rate #trio #saltycysters #gunnaresiason #invisibleillness #breathingoneverest #spoonie #chronicillness #documentary #youtube #everest #direct #marathon #runner
No, this wasn't a toga party, it was a trip to the doctor for EKG. And before I say anything else, my ekg was normal πŸ€—πŸ€—πŸ€— I questioned myself whether to post this, but I'm so damn angry. I had the royal pleasure of a colonoscopy yesterday (which ruined and postponed my thanksgiving dinner for my children on Sunday because I had to 'prep' for it (don't ask). But I'm not going to talk anymore about that. What happened today was frightening, chest pain, arm pain, dizziness, so my doctor (intern) said come in right away. I did. Hubby left work to come pick me up, a nervous wreck. Long story short, my insurance doesn't kick in till January 1, 2019. So you know what these fuckers did? Nothing. Admittedly. She said once my insurance starts I have to have a "battery of tests" then. They wouldn't even take my blood, which is the FIRST thing a doctor should do, let alone when my fatigue is so extreme, the first thing they test is my blood because of previous cancer in my thyroid. Then she told me I couldn't get my flu shot. I'm not kidding, this girl was lucky I didn't strangle her. I told her I wouldn't leave until I got my flu shot, and told her to bill me. I also said to her how sad it is that only people who can afford insurance are worthy of a flu shot, like seriously, are we all human beings or not? It made me fucking sick. She told me to avoid stress (🀣🀣🀣) and if I got more chest pains go to er. That was it. Told me to call in January when I have insurance to schedule all my tests. I'm mad as fuck right now, and I feel expendable, embarrassed, demeaned, shamed, and fucking furious, and I know you #spoonies and #spooniesupporters know EXACTLY what I'm talking about. I'm sorry loves for bringing you down, but this is my life, and I see no reason to not try to raise awareness in any way I can. Know this my dears, as mad and in physical pain I'm in right now, I know so many suffer the same, and so much worse. Know that I love you, and I suffer with you,
Tonight/today has been so difficult. I took a shower so one win. I couldn't do much. I can't stop wincing about my pain. Tomorrow, I am grateful for seeing my pdoc and therapist. #badmentalhealthday #tiredofbeingtired #spoonies  #mdd #did #nightmares #ptsd #cptsd #traumasurvivor #mentalhealthawareness #chronicpain #chronicillness #fibromyalgia #lupuslife #lifeasalupie #choosekindness #myday #foggy #brainfog #dontjudgemechallenge
Fam portrait ❀️🐾 I’ve been making an effort to walk more each day with my fur friends. I’m learning how many steps I can take without over doing it and the importance of exercise. I used to walk a lot more before my dog died last year and have noticed that it makes a huge difference! I am so grateful to be close to my cousins (and human cousins). #millionsmissing #millionsmissingorlando #mecfs #meawarenessmonth #cfs #chronicillness #chronicpain #pain #fibromyalgia #myalgicencephalomyelitis #hope #orlando #invisibleillness #invisible #meaction
// D A Y  N I N E T E E N // . I want to go back a day to talk about a topic that is near and dear to my heart: burnout. . It may not look it, but here in this picture, in the summer of 2016, I was deep in diabetic burnout. I was in complete disillusion, frustration. I was ignoring the fact that I had diabetes and was disregarding blood sugar levels and was ignoring the fact that I was very sick. Simply put, I was sick and tired of everything diabetes. . So, I started avoiding it. I would cancel my doctor's appointments, I would get lazy with carb counting, I wouldn't check my blood sugar, I would skip insulin dosages. I let burnout take over. . But a couple of months later, it eventually caught up to me. I knew how sick I was and I made the call for help and took myself to the emergency room, feeling just as bad as when I was diagnosed. I ended up spending a week in the ICU and am forever grateful for the team that took care of me. . I share this for normalcy. Burnout is common and natural, especially for those dealing with chronic illness. . I look at this picture and recall those feelings bottling up to the rim. I felt like no one would understand how or why I even got to burnout in the first place. I felt embarrassed, ashamed, and angry with myself for getting to such a point. But T R U S T M E when I say that a huge burden is lifted when you make that call for help. You come out of hiding. You let yourself breathe, feel. . And what I've learned having been through burnout is the only way out is through. To be honest with yourself and with your feelings. To be kind with yourself. Giving myself permission to feel angry, upset, frustrated when I need to, has helped me through the lowest of burnout. But it has also taught me to be empathetic. You never know what someone may be going through. . If you know of someone experiencing burnout, be kind, be understanding. And if you yourself are experiencing burnout, be brave. It takes so much courage to ask for help, I
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New mini air fryer tested out tonight. My other one stopped working after a few times of use so back to @costco it went. Wings turned out AMAZING!!!! #wings #lowcarb #keto #airfryer #stayingonplan #autoimmunedisease #chronicillness #chronicpain #sjogrens #multiplesclerosis #rheumatoidarthritis #osteoarthritis #migraine #strokesurvivor #vsg #weightlossjourney #nervepain #nervedamage #herniateddisc #spinalstenosis #antiinflammatorydiet