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I just want to say that I’ve had quite a few people that I know say to me “oh I’ve got a cold, and I can still go out” “you aren’t as bad as others” “other people out there are dying, you aren’t”... I don’t just have a cold, my nervous system does not work and the pain I can have from Gastroparesis (paralysed stomach) is as extreme as appendicitis. No I am not as bad as other people but this is MY bad and I’m allowed to grieve over my own illness I have, even if it isn’t as bad as others, I know a lot of people have a lot more than me and I feel for them so much and lastly Gastroparesis can slowly kill me, I can not get all the nutrients and food into which means my body will slowly starve and then my organs will slowly shut down, if we don’t get onto the right medications/feeds. I know others out there are dying and I think about them all the time, but I don’t appreciate people saying these things to me, a chronic illness is SO different to all other illness’s that are well known, I know most people wouldn’t go up to someone and say that kind of stuff to a person who has a well known illness. ANYWAY thanks for reading my rant 😴 I have a little update about my day today... . My stomach has been playing up all day long and eating the last meal for the day has definitely set it off badly, I’m laying in bed right now with my heat pack trying not to let the pain get the best of me. Gastroparesis sucks and I can’t wait till my GI can sort everything out and help me have some relief... 😩 . . Sorry this post was mostly on the negative side but I just want people to know that those kinds of things you say to us hurt. . #chronicillness#chronicpain#spoonie#invisibleillness#anxiety#autoimmunedisease#chronicfatigue#mentalhealth#spoonielife#pain#depression#health#autoimmune#endometriosis#chronicillnesswarrior#ehlersdanlossyndrome#arthritis#love#lupus#pots#selfcare#dysautonomia#wellness#butyoudontlooksick#eds
Stairs are everywhere in Venice! I’ve climbed up and down over a thousand stairs in the few days I’ve been here. What a great workout! The first picture here is going down the stairs of the Rialto Bridge. The red carpeted stairs are to the third floor of our hotel-no elevator! Breakfast is on the second floor.(That’s 35 stairs if you want to eat.) We’ve climbed up and down a myriad of bridges all over the place. Most are small and beautiful bridges, but it’s up and down to cross them. There were even three floors in the Glass Museum yesterday! By the end of each day, my legs have been ready to take a break. My husband has RA and this city has been a challenge for him. His joints have definitely been overloaded and his pain has been high. We’re glad we made this trip now because in the future he would not be able to manage all the walking and stairs. And here’s a reminder- just because someone looks great on the outside, that often doesn’t tell the whole story. My husband looks fit and is not overweight, but his body hurts all the time. Sometimes people expect too much from him because he doesn’t look disabled, but he has his limitations. Please be kind and understanding to everyone.
Wrist Osteoarthritis 💢❗️🤕 —————————————— A very common complaint amongst people with wrist pain. Especially those people with manual jobs or people who do sport that involves the wrist and puts a lot of stress upon it. Symptoms include swelling, stiffness, pain and weakness. NOTE: rheumatoid arthritis can develop in smaller joints first such as the wrist. It is therefore important to get a proper assessment on any wrist pain you have that you think could be a degenerative problem like osteoarthritis. #arthritis#wristpain#physio#rehab#hertfordshire#brookmanspark#pottersbar#hatfield#welwyn#welhamgreen
I have officially published my first blog post!!! Sitting down to write out my health journey was much harder than I had anticipated. I hope that by being transparent and sharing my story, others can benefit. Let me know what you think! Head over to https://joyfuljewls.wixsite.com/joyfuljewls to read newest post! 🌸💜🌸